• jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Hospice

    Other Care

    Put on hospice prematurely. Still feels like she has lots of life left in her. Still willing to fight! Confused about whether she ne...

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    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    3 blood transfusions later and her blood has started to produce cells again! Yay! She was very creeped out by the thought of someone...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Infections and low blood counts due to chemotherapy

    Oh No

    Hospitalized 10 days for multiple infections. While receiving treatment, her body stopped producing platelets, white blood cells, an...

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    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Chemotherapy did not work. What now?

    Decision Point

    It's a terrible feeling to be told by doctors that the only hope of treatment has failed and "there's nothing else to try." Now what?

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    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Made my mother sicker than ever before. Not sure what to make of this. She felt like she was getting worse, but I was hoping she was...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Cancer is back/Recurred

    Oh No

    Looks like surgery did not remove it all... half of liver was removed, now remaining half shows a new growth.

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    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Surgery

    Procedure or Surgery

    Told by surgeons "Surgery went better than expected. Picture-perfect and we got everything!" Feeling hopeful!

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 5 years ago
    ToddandKaren's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Mitotane 500 mg tablets - for now taking 6 per day; fatigue

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. almost 6 years ago
    ToddandKaren's Avatar

    Misdiagnosed

    Oh No

    First is was adrenocortical carcinoma; then it was clear cell renal; now it's back to adreno

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  3. almost 6 years ago
    ToddandKaren's Avatar

    Health insurance issue

    Oh No

    Group healthcare denied scans 4 months before diagnosis

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  4. about 6 years ago
    czlittlebit's Avatar

    Cancer has spread/Metastasized

    Oh No

    Got word that she has cancer and within a week were told that it was stage 4

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    • staege2x
    • Experience with Adrenal Cortical Canc...
    over 6 years ago
    staege2x's Avatar

    diagnoses taken 30 days ???

    Procedure or Surgery

    why are they taking so long on the pathology ?

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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