1. almost 3 years ago
    shakyamuni12's Avatar

    TO be discussed with Dr. Clifford Davis, Tampa , FL on 12/12/2018

    Procedure or Surgery

    This will be Interventional Radiologist #3. Dr Davis is a member of Tampa General Liver Transplant Team

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. almost 3 years ago
  3. almost 3 years ago
    shakyamuni12's Avatar

    Psychosocial

    Other Care

    I am regular weekly contact with person from Cancer Hope Network by telephone. I also have a therapist I meet with bi-monthly. ARN...

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    0 Comments
  4. almost 3 years ago
    shakyamuni12's Avatar

    Met with Liver Transplant team surgeon. Surgeon stated to cease next round of treatment on session for 2nd tumor, as Cyberknifenot SOC for HCC

    Decision Point

    Surgeon read notes and scans prior to meeting with me. He stated Cyberknife was not SOC for HCC. Surgeon displayed MRI scan and poin...

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    0 Comments
  5. almost 3 years ago
    shakyamuni12's Avatar

    Other

    Side Effects

    fatique, dizziness, weakness, hot flashes, gastrointestinal discomfort, anxiety, loss of appetite, general malaise Sick enough to c...

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    0 Comments
  6. almost 3 years ago
    shakyamuni12's Avatar

    CYBERKNIFE RADIATION one tumor

    Procedure or Surgery

    Side effects not explained thoroughly, understated. Staff at Cyberknife office disrespectful, rude, and "yelled" at me for asking qu...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. almost 3 years ago
    shakyamuni12's Avatar

    wrong treatment on first tumor

    Oh No

    Initial diagnosis July 31, 2018. During August appointment PCP provider did not review all possible options for treatment thoroughly...

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    1 Comment
    • momule
    • Experience with Liver Cancer
    almost 3 years ago
    momule's Avatar

    Anniversary

    Celebration

    Two Year anniversary of being a liver transplant/cancer survivor human being. Doctors and hospitals are a way of life now but life t...

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    1 Comment
  8. almost 3 years ago
    Sickchick's Avatar

    Constipation

    Side Effects

    Tired and mouth sores

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    0 Comments
  9. almost 3 years ago
    Gggggggg's Avatar

    Drug or Chemo Therapy

    Have not started. Not sure about this chemo pill!!!

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. almost 3 years ago
    Gggggggg's Avatar

    Lowest Chemo pill

    Decision Point

    Worried, don’t feel enough results from the pill are given. Always told it’s different for everyone!! Really feeling sadden & dissat...

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    0 Comments
    • Vic
    • Experience with Hepatocellular Carcinoma o...
    about 3 years ago
    Vic's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    I am not the patient

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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