• roth
    • Experience with Lymphoma of the Skin
    almost 7 years ago
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    Fatigue (tiredness)

    Side Effects

    At this time, 3 years post diagnosis and radiation and chemo, I have onset of increased tiredness, fatigue, muscle weakness and the ...

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    • roth
    • Experience with Lymphoma of the Skin
    almost 7 years ago
    roth's Avatar

    Radiation

    Lost muscle tissue and general strength following radiation and chemo. Developed some difficulty swallowing.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • roth
    • Experience with Lymphoma of the Skin
    almost 7 years ago
    roth's Avatar

    Drug or Chemo Therapy

    Lost a lot of muscle tissue and strength

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • roth
    • Experience with Lymphoma of the Skin
    almost 7 years ago
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    Surgery

    Procedure or Surgery

    The tumor, located just under the skin was easily removed. it was followed by chemo and radiation.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • roth
    • Experience with Lymphoma of the Skin
    almost 7 years ago
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    Oh No

    My lymphoma was not in the skin; it was under the skin in my neck under the jawbone.

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  1. almost 7 years ago
    DonnaDriver's Avatar

    Misdiagnosed

    Oh No

    I had a rash for 3 1/2 years before being diagnosed. I had seen 17 different doctors; most just thought it was eczema or a food alle...

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  2. almost 7 years ago
    DonnaDriver's Avatar

    Fatigue (tiredness)

    Side Effects

    the chemo meds messed up my thyroid and cholestoral levels.

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  3. almost 7 years ago
    DonnaDriver's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    chemo pills; chemo shots; light treatments

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • jrb14141
    • Experience with Lymphoma of the Skin
    over 7 years ago
    jrb14141's Avatar

    Clinical Trial

    I have been accepted into a clinical trial at the National institute of Health in Bethesda Maryland as medicare would not pay. This ...

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    • jrb14141
    • Experience with Lymphoma of the Skin
    over 7 years ago
    jrb14141's Avatar

    targretin capsules $2000 monthly

    Drug or Chemo Therapy

    Spent a fortune and no relief obtained.Finally changed doctors and was put on a monoclonal antibody. Minimal side effects except the...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jrb14141
    • Experience with Lymphoma of the Skin
    over 7 years ago
    jrb14141's Avatar

    External radiation

    Radiation

    At the Cancer center we agreed to try the radiation as a first line treatment altho it usually isn't because of my skin changes whic...

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • jrb14141
    • Experience with Lymphoma of the Skin
    over 7 years ago
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    skin biopsy

    Procedure or Surgery

    Was finally diagnosed with Cutaneous T Cell Lymphoma or Mycosis Fungoidis.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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