1. 10 months ago
  2. 10 months ago
    Guitarman's Avatar

    Discontinue cancer care visits.

    Decision Point

    After Dx with lewey body dementia, which I feel related to cancer. MD has seen handful of cases like mine, but rare. Experienced deb...

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    0 Comments
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    about 1 year ago
    Menve's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First round of R-CHOP done 1/6/21

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    about 1 year ago
    Menve's Avatar

    Surgery

    Procedure or Surgery

    Had a mass on spinal cord removed

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    about 1 year ago
    CookiesMom's Avatar

    Rituxan - & on Imbruvica Daily 420 mg

    Drug or Chemo Therapy

    Minor issues with both. Luckily, handled well & tolerable.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    about 1 year ago
    CookiesMom's Avatar

    Thought it was pneumonia. NOPE.

    Oh No

    Needed 6 blood transfusions as blood levels at 4.1 super low. Secondary cold agglutinins doing the PacMan thing w/my blood cells.

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    0 Comments
    • Homans
    • Experience with B-Cell Lymphoma
    over 1 year ago
    Homans' Avatar

    Remission

    Celebration

    After two failed chemo treatments, received CAR-T immunotherapy June of 2019, all cancer, tumors gone. Had 1 year follow up scan, st...

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    0 Comments
  3. over 1 year ago
    Buddyritz's Avatar

    Loss

    My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the...

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    0 Comments
    • Luvs
    • Experience with Angioimmunoblastic T-Cell...
    over 1 year ago
    Luvs' Avatar

    Day one of Stem Cell Transplant

    Celebration

    I’m now 6 months Post Stem Cell still weekly blood tests and doctors appointment

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    0 Comments
    • Luvs
    • Experience with Angioimmunoblastic T-Cell...
    over 1 year ago
    Luvs' Avatar

    Diarrhea

    Side Effects

    Chemo brain, cramps in legs, fatigue,

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    0 Comments
    • Luvs
    • Experience with Angioimmunoblastic T-Cell...
    over 1 year ago
    Luvs' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo drugs-chop/ice/beam and Melphalan

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Luvs
    • Experience with Angioimmunoblastic T-Cell...
    over 1 year ago
    Luvs' Avatar

    Surgery

    Procedure or Surgery

    2 lymph nodes removed for biopsy, Bone marrow biopsy

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
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