1. 11 months ago
    Beaujingles' Avatar

    Wait and See mode until April when platelet count was under 20K. Now on 420MG Imbruvic (aka Ibrutinib), side effects has been some diarrhea

    Procedure or Surgery

    as of 22nd June platelet count is 73K

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • debbie1951
    • Experience with Diffuse Large B-Cel...
    11 months ago
    debbie1951's Avatar

    Anniversary

    Celebration

    2020 marks 8 years in remission. Our first grandchild is on the way!! Praise God!!! Feeling very good with minimal side effects. ...

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    0 Comments
    • Wrenae
    • Experience with B-Cell Lymphoma
    12 months ago
    Wrenae's Avatar

    Other

    Milestones

    I was diagnosed Nov 2011, Stage 3, Incurable Non-Hodgkin's Follicular Lymphoma (NHFL). I did 2.5 years chemo Bendamustin & Rituxan ...

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    0 Comments
  2. 12 months ago
    withGodshelp's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    I have a chemo fog constipation severe migraines extremely tired sleep a lot depression fear the unknown. Excessively dry mouth hot ...

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    0 Comments
  3. about 1 year ago
    leonardgreeson's Avatar

    Anniversary

    Celebration

    I am now Celebrating the 5 year mark of being in Total Remission and not having signs of it Returning , I had finished my Chemo trea...

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    0 Comments
  4. about 1 year ago
    Buddyritz's Avatar

    Fatigue (tiredness)

    Side Effects

    It has been about 11 months since any trace of the original cancer. I have reported in the past about extreme fatigue and tiredness...

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    0 Comments
  5. about 1 year ago
    Beaujingles' Avatar

    Update and on-going monitoring of lymphoma

    Other Care

    7/2019 - low-grade B-cell lymphoma or lymphoplasmacytic type in bone marrow. 10/7/19 - CT scan of chest and abdomen. Small nodes ...

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    0 Comments
    • HSguide
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    HSguide's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My port implantation went much better than I had expected. It's been 10 days since receiving it and it's still not real comfortable ...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • HSguide
    • Experience with Diffuse Large B-Cell L...
    over 1 year ago
    HSguide's Avatar

    Just Diagnosed

    Oh No

    I've just been diagnosed with Diffuse Large B Cell Lymphoma. In two days I'll learn what stage and my treatment plan.

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    1 Comment
    • jjs2019
    • Experience with B-Cell Lymphoma
    over 1 year ago
    jjs2019's Avatar

    Pain

    Side Effects

    Bone pain

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    0 Comments
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 1 year ago
    Gymmom's Avatar

    Remission

    Celebration

    Clear scan on 7/28/19

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    0 Comments
    • Marycham
    • Experience with Non-Hodgkin Lymphoma ...
    over 1 year ago
    Marycham's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I went from diagnosis at dr office to hospital to start EPOCH chemo for aggressive B cell nhl. No time to think or prepare. Lot of t...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
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