• SSmith5780
    • Experience with Low-grade Astrocytoma
    9 months ago
    SSmith5780's Avatar

    Just Diagnosed

    Oh No

    I started having migraines and the medication they put me on, did not work. So, I was sent for a CT and they found an unidentifiable...

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  1. 9 months ago
    Pmetzgerlyse's Avatar

    Surgery

    Procedure or Surgery

    My whole right side has been effected

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • NicoleK
    • Experience with Brain and Spinal Cord ...
    10 months ago
    NicoleK's Avatar

    Surgery

    Procedure or Surgery

    Suffered from bad headaches daily for two months.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Vcas
    • Experience with High-Grade Astrocytoma (a...
    10 months ago
    Vcas' Avatar

    External radiation

    Radiation

    more tired after 4 weeks

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • CRAPPY
    • Experience with High-Grade Astrocytoma ...
    12 months ago
    CRAPPY's Avatar

    Surgery

    Procedure or Surgery

    Speech and occupational therapy

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Megan75
    • Experience with Medulloblastoma
    about 1 year ago
    Megan75's Avatar

    External radiation

    Radiation

    30 Proton treatments. It’s mentally and physically exhausting.

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Megan75
    • Experience with Medulloblastoma
    about 1 year ago
    Megan75's Avatar

    Surgery

    Procedure or Surgery

    We are lucky in so many ways but this has been the most difficult thing we have ever been through. It was out of the blue. Life will...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • JennyWren
    • Experience with High-Grade Astrocyto...
    about 1 year ago
    JennyWren's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    No nausea or hair loss, minimal fatigue but still a battle to ingest knowing that it can do harm to good cells too

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • JennyWren
    • Experience with High-Grade Astrocyto...
    about 1 year ago
    JennyWren's Avatar

    Surgery

    Procedure or Surgery

    Ten days after my husbands craniotomy he suffered a brain bleed / stroke in which neurosurgeon suggested to just let him go due to t...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • JennyWren
    • Experience with High-Grade Astrocyto...
    about 1 year ago
    JennyWren's Avatar

    Oh No

    My husband is younger than I am, he is active and fit.... how can this have happened and why him and not me. He is so strong emotio...

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    0 Comments
    • llsullivan
    • Experience with High-Grade Astrocyt...
    about 1 year ago
    llsullivan's Avatar

    when I got out of hospital... neurosurgeon had told my family everything... i didnt

    Oh No

    understand anything !!! I thought I was done heal and go back to work... easy peasy lemon squeezy.. WRONG

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    0 Comments
    • marly
    • Experience with High-Grade Astrocytoma (...
    over 1 year ago
    marly's Avatar

    Internal radiation

    Radiation

    had only 21 of the prescribed 28 treatments and even those 21 were not consistent because patient sometmes refused the treatments be...

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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