• andreajd
    • Experience with Brain and Spinal Cord...
    about 1 year ago
    andreajd's Avatar

    Cancer has spread/Metastasized

    Oh No

    Broca in brain. 2018. Frontal lobe 2019

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    0 Comments
    • Beamer
    • Experience with High-Grade Astrocytoma ...
    over 1 year ago
    Beamer's Avatar

    Surgery

    Procedure or Surgery

    Surgery, although necessary, had complications/bleeding, and because of the deep location of the tumor caused more swelling and reco...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    over 1 year ago
    SSmith5780's Avatar

    Oncologist / Radiologist Appointments

    Other Care

    I just had my first appointment with the Oncologist and have my first meeting with the Radiologist next week. I'm told I'll have 6 w...

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    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    over 1 year ago
    SSmith5780's Avatar

    Stitches started dissolving to quick.

    Oh No

    I had my follow up from Surgery on a Tuesday and the Surgeon said everything looked great and was pleased. Wednesday, I was sitting ...

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    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    over 1 year ago
    SSmith5780's Avatar

    Surgery

    Procedure or Surgery

    I had "Awake Brain Surgery" to remove as much as they could. I got really sick during surgery and the first 12 hours after surgery. ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • SSmith5780
    • Experience with Low-grade Astrocytoma
    over 1 year ago
    SSmith5780's Avatar

    Just Diagnosed

    Oh No

    I started having migraines and the medication they put me on, did not work. So, I was sent for a CT and they found an unidentifiable...

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    0 Comments
  1. over 1 year ago
    Pmetzgerlyse's Avatar

    Surgery

    Procedure or Surgery

    My whole right side has been effected

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • NicoleK
    • Experience with Brain and Spinal Cord ...
    over 1 year ago
    NicoleK's Avatar

    Surgery

    Procedure or Surgery

    Suffered from bad headaches daily for two months.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Vcas
    • Experience with High-Grade Astrocytoma (a...
    over 1 year ago
    Vcas' Avatar

    External radiation

    Radiation

    more tired after 4 weeks

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • CRAPPY
    • Experience with High-Grade Astrocytoma ...
    over 1 year ago
    CRAPPY's Avatar

    Surgery

    Procedure or Surgery

    Speech and occupational therapy

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Megan75
    • Experience with Medulloblastoma
    over 1 year ago
    Megan75's Avatar

    External radiation

    Radiation

    30 Proton treatments. It’s mentally and physically exhausting.

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Megan75
    • Experience with Medulloblastoma
    over 1 year ago
    Megan75's Avatar

    Surgery

    Procedure or Surgery

    We are lucky in so many ways but this has been the most difficult thing we have ever been through. It was out of the blue. Life will...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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