• Sbri
    • Experience with Angiosarcomas, Sarcoma
    10 months ago
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    Oh No

    Surprise to have disease

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    0 Comments
    • Tbluvr
    • Experience with Sarcoma - Adult Soft Ti...
    11 months ago
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    Finished treatment

    Celebration

    Chemo is done. Scams came back good. Still have radiation to do but nice to know at moment im cancer free. Rescan in 3 months

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    0 Comments
    • Tbluvr
    • Experience with Sarcoma - Adult Soft Ti...
    11 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had a lot of side effects with chemo. Needed blood and platelets on a routine basis. I tried very hard to continue to work full ti...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • D-14
    • Experience with Sarcoma - Adult Soft Tiss...
    12 months ago
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    External radiation

    Radiation

    I worked fulltime during radiation treatments, my appointment was at 4:45 pm each day. Side effects included a very bad sunburn (I'...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • D-14
    • Experience with Sarcoma - Adult Soft Tiss...
    12 months ago
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    Surgery

    Procedure or Surgery

    Surgical outcome was BETTER than expected: Limb was spared with full range of motion (technically I CAN move it, but hurts like XXX ...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • D-14
    • Experience with Sarcoma - Adult Soft Tiss...
    12 months ago
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    Misdiagnosed

    Oh No

    After 5 months of misdiagnosis with visible rapid tumor growth, my wife's oncologist took a brief look and ordered MRI STAT. I was ...

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    • AlanGK
    • Experience with Pleomorphic Undifferent...
    about 1 year ago
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    Celebration

    It has been 5 years since the surgery to remove my tumor so I have graduated to once a year visits to MD Anderson. Pain from chemo d...

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    • Paulab
    • Experience with Pleomorphic Undifferent...
    about 1 year ago
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    Surgery

    Procedure or Surgery

    Happy to have both the tumor (named Pearl) out & pain gone!

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    about 1 year ago
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    Anniversary

    Celebration

    5 years out without metastasis. Down to 1 visit per year for screening.

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    • Tbluvr
    • Experience with Sarcoma - Adult Soft Ti...
    about 1 year ago
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    Surgery

    Procedure or Surgery

    Tumor romoved from left thigh. Went into sugery not knowing exactly what it was as tumor was wrapped around femeral artery and vein....

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Sylc813
    • Experience with Hemangiosarcoma, Sarcoma
    over 1 year ago
    Sylc813's Avatar

    Just Diagnosed

    Oh No

    In denial. Other than back issues, I am pretty healthy

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    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Side Effects

    Through all of the side effects of the chemo, the disappointment every time they didn't work, the surgeries, and knowing it will re...

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