• dumbo
    • Experience with Gastrointestinal Stromal...
    over 3 years ago
    dumbo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I take Stivarga (oral chemotherapy). It has me in a state of cancer fatigue that leaves me with about 35% of my normal energy.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Grammyma
    • Experience with Carcinoid tumor, Smal...
    about 4 years ago
    Grammyma's Avatar

    Drug or Chemo Therapy

    Carcinoid metastisised to Liver. Now have lesions on liver. Had to have chemoembolisation. Have one lesion that has started to gr...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 4 years ago
    thompsonsaraht's Avatar

    Cancer has spread/Metastasized

    Oh No

    Surgeon only saw localized cancer, but PET scan showed spread to heart and ovaries.

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    0 Comments
  2. over 4 years ago
    thompsonsaraht's Avatar

    Surgery

    Procedure or Surgery

    Had 7cm of small intestine removed due to complete blockage.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    almost 5 years ago
    rosina88's Avatar

    Lost loved one

    Loss

    My beloved husband lost his battle to small intestine cancer on September 25, 2016.

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    0 Comments
    • NancyMc
    • Experience with Gastrointestinal Strom...
    almost 5 years ago
    NancyMc's Avatar

    Treatment plan

    Oh No

    Two EUS and no pathology because they can't get tissue due to calcification. EUS and CT measurements are different - CT shows twice...

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    0 Comments
    • Wlevy7768
    • Experience with Adenocarcinoma, Smal...
    over 5 years ago
    Wlevy7768's Avatar

    Being told results of biopsy

    Oh No

    I was told today i have cancer... Scary word felt like i got hit in gut. Ok now more testing

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    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Cancer has spread/Metastasized

    Oh No

    Husband's hip shattered, but hospital didn't diagnose for a week while he was stuck in bed at hospital in utter agony. He was trans...

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    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Only managed one round before the next disaster happened...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • rosina88
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    rosina88's Avatar

    Cancer has spread/Metastasized

    Oh No

    On top of the work problems, cancer has spread to the stomach wall. Next up is Folfiri.

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    0 Comments
    • Longlife
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    Longlife's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    I've had multiple tests to try to figure out "why" I got small intestine cancer. My best answer was because my immune system was co...

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    • Longlife
    • Experience with Adenocarcinoma, Small...
    over 5 years ago
    Longlife's Avatar

    Take back control from just the doctors telling me how to treat me.

    Decision Point

    By more than midway through treatments, I got 2nd opinion at Cancer Treatment Centers of America whereby they set me on a natuorpath...

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    0 Comments
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