• sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    almost 2 years ago
    sharkbayte's Avatar

    First 3 month Pet Scan is Clean

    Celebration

    First 3 month Pet Scan after surgery was clear no sign of cancer

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    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    almost 2 years ago
    sharkbayte's Avatar

    leakage

    Side Effects

    leakage from urine, bowels and vaginal area. Constantly wet, burning when having bowel movements, sometimes with blood. Burns when I...

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    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    almost 2 years ago
    sharkbayte's Avatar

    External radiation

    Radiation

    I had high doses over a very short period. Its been 4 weeks post radiation and I am still dealing with side effects.

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    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    almost 2 years ago
    sharkbayte's Avatar

    Surgery

    Procedure or Surgery

    Partial Vulvectomy

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. over 2 years ago
    Courtney980's Avatar

    Lost loved one

    Loss

    Lost my fiancee right before my surgery

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    0 Comments
    • Chiperwil
    • Experience with Squamous Cell Carcin...
    over 3 years ago
    Chiperwil's Avatar

    Other

    Procedure or Surgery

    Surgery pending

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  2. over 3 years ago
    marmalisa's Avatar

    External radiation

    Radiation

    Started radiation treatment April 19, 2013. While lying on the table is the easy part, the after effects ARE NOT!

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. over 3 years ago
    marmalisa's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    1st day of chemo was April 15, 2013. Meds were mitomycin and FU5 pack. Did the mitomycin drip at chemo room and wore the FU5 pack ho...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. over 3 years ago
    marmalisa's Avatar

    treatment

    Decision Point

    Really decided that chemo/radiation would be best being that the radical surgery to remove my vagina(+tumor & other areas) was not a...

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    0 Comments
  5. over 3 years ago
    marmalisa's Avatar

    Infection

    Side Effects

    An infection occurred from the biopsy procedure (and a tooth infection, tooth pulled). These things and finding 2 Dr's that would ta...

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    • inetladyj
    • Experience with Squamous Cell Carcin...
    over 4 years ago
    inetladyj's Avatar

    Palliative care

    Other Care

    After 6 biopsies it was confirmed cancer sgain. No more treatment can be done.

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    0 Comments
    • inetladyj
    • Experience with Squamous Cell Carcin...
    over 4 years ago
    inetladyj's Avatar

    Surgery

    Procedure or Surgery

    5th surgery to vulva

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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