• PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
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    Nausea/Vomiting

    Side Effects

    Constantly feel nauseous. Sometimes it will creep up on me out of the blue.

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Mood changes

    Side Effects

    This is a roller coaster for me. Every day is different for me. Some days I am good and laughing and others I would prefer that no...

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    It can be 80 degrees outside and I am wrapped up in a blanket freezing. I run fevers at night mainly. Not all the time, but at leas...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Fatigue (tiredness)

    Side Effects

    I constantly feel fatigued. I have to push myself in to getting ready and get myself out of the house. Some days it's good, other ...

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
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    Depression/Anxiety

    Side Effects

    I have depression with anxiety since my diagnosis. It isn't unusual for me to wake crying. Some days I just stay in and rest.

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
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    Diarrhea

    Side Effects

    After every meal......need I say more?

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Chemo brain

    Side Effects

    Constantly feel foggy. I used to read a lot and now it is hard for me to concentrate. I still try even though it may be just a few...

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    1 Comment
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Internal radiation

    Radiation

    I entered into a treatment to try to shrink four very large tumors and hoping to shrink even the smaller ones that are in my liver. ...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was constantly in the bathroom. Foods didn't taste good. Made me irritable on some days. I took Affinitor by mouth once a day

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Cancer has spread/Metastasized

    Oh No

    My cancer has mets to liver (30) tumors so far. I did Affinitor for 7 months and it quit working. We are looking into other treatm...

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    0 Comments
    • mrsdahrens
    • Experience with Neuroendocrine Carc...
    about 4 years ago
    mrsdahrens' Avatar

    The love of my life

    Loss

    My husband, David, lost his battle with cancer July 13th, 2015. I'm sorry I haven't been on here much...it is a very difficult thin...

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    0 Comments
    • Salical
    • Experience with Neuroendocrine Carcino...
    about 4 years ago
    Salical's Avatar

    Other

    Other Care

    Following with PET scans every 6 mos

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    0 Comments
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