• Pablo
    • Experience with Squamous Cell Carcinoma,...
    about 6 years ago
    Pablo's Avatar

    Oh No

    I got the results of my biopsy and PET/CT scan. The suspicious lymph node came back positive. Good news, that one little node was ...

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    0 Comments
    • mariad
    • Experience with Malignant melanoma, Ana...
    about 6 years ago
    mariad's Avatar

    None

    Clinical Trial

    signed up, and was declined because they could not prove metastatic at the time of enrollment.

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    1 Comment
    • mariad
    • Experience with Malignant melanoma, Ana...
    about 6 years ago
    mariad's Avatar

    Money

    Oh No

    The bills are overwhelming, along with the volume of paper! So far, 10K for 2013 and another 10K this year, and still climbing!!!

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    1 Comment
    • mariad
    • Experience with Malignant melanoma, Ana...
    about 6 years ago
    mariad's Avatar

    Health insurance issue

    Oh No

    I tried to find an Oncologist that had experience with MUCOSAL MELANOMA, and the one I found was at MSKCC, in NYC. I tried getting a...

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    0 Comments
    • mariad
    • Experience with Malignant melanoma, Ana...
    about 6 years ago
    mariad's Avatar

    Surgery through the anus to remove tumor

    Procedure or Surgery

    Surgery went fairly smoothly, with mild incontinence for approximately 1 month. So happy they didn't have to do a colostomy.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Pablo
    • Experience with Squamous Cell Carcinoma,...
    over 6 years ago
    Pablo's Avatar

    Oh No

    I had my third routine follow-up CT scan last week, having finished treatments about 1.5 years ago. The first two were clear; this ...

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    1 Comment
    • TinaLR
    • Experience with Squamous Cell Carcinoma...
    over 6 years ago
    TinaLR's Avatar

    Radiation and chemotherapy together

    Radiation

    Finished my radiation treatment 1 week ago. Extreme pain when going to bathroom. Urine burns and bowl movements are so painful I al...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    4 Comments
    • sue57
    • Experience with Squamous Cell Carcinoma,...
    over 6 years ago
    sue57's Avatar

    Pain

    Side Effects

    Painful bowel movements

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    0 Comments
  1. over 6 years ago
    aLauraborealis' Avatar

    Hospitalization

    Other Care

    Admitted for 8 days for pain control

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    0 Comments
  2. over 6 years ago
  3. over 6 years ago
    aLauraborealis' Avatar

    Skin changes

    Side Effects

    Tiny pimples that disappeared. Splotchy skin darkening on face that has not gone away.

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    0 Comments
  4. over 6 years ago
    aLauraborealis' Avatar

    Sexual side effects

    Side Effects

    Painful intercourse

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    0 Comments
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