• Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    WHAT DO WE DO NOW?

    Decision Point

    Giving up is not an option. We have a 4 year old and a 7 year old that need him.

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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Cancer has spread/Metastasized

    Oh No

    After three cycles of the clinical trial, Jason's PET scan revealed progression of disease with more spots in liver and lungs, and p...

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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Immunotherapy

    Clinical Trial

    Jason signed up for a clinical trial at MD Anderson which seemed very promising. When we learned about the trial, it would be a ...

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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    What other doctor's could we go see

    Decision Point

    We went to Johns Hopkins where we learned about other options and they looked into clinical trials to no avail. I emailed many insti...

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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Cancer has spread/Metastasized

    Oh No

    Jason's oncologist told him January 26th that there was more progression and we were running out of options.

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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    Jason's cancer began to progress in April 2017, so he went back on FolFox and Avastin. This lasted until October 2017, when progress...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    Following his six weeks of recovery, Jason started on Avastin and Xeloda.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    October 2016, Jason had a partial resection of his colon. He had to stop chemotherapy for 6 weeks prior to surgery and could not hav...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    Jason first had FolFox with Avastin. For 6 months.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Colostomy

    Procedure or Surgery

    The day after diagnosis, Jason had an emergency diversion colostomy since his colon tumor was blocking 99% of his colon.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Team_Jason
    • Experience with Adenocarcinoma, Col...
    5 days ago
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    Just Diagnosed

    Oh No

    When we first learned Jason had stage iv colon cancer we were in a state of shock. We, at the time, had a 1 year old son and a 4 yea...

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    • FayLynn
    • Experience with Chronic Lymphocytic Le...
    5 days ago
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    Ibrutinib

    Drug or Chemo Therapy

    On a reduced dose but seeing a slow recovery to lab numbers

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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