• staege2x
    • Experience with Adrenal Cortical Canc...
    over 6 years ago
    staege2x's Avatar

    Cancer has spread/Metastasized

    Oh No

    4.0 mass on left adrenal gland

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    JamesMom's Avatar

    Make-A-Wish Trip!

    Celebration

    Going on Make-a-Wish trip this November. James is very excited and we are looking forward to having fun as a family.

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    JamesMom's Avatar

    Chemo brain

    Side Effects

    Confirmed that James' mitotane levels are too high and causing toxicity. 24.9 after last check; should be between 14 and 20. Will wo...

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    0 Comments
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    testing

    Other Care

    ever since the diagnosis of the Adrenal Cortical Carcinoma, I have had to sign lots of papers and have had tons of testing done. I ...

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    0 Comments
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    Overly tired from stress.

    Side Effects

    To this day, I have a really hard time with any type of stress. I’m just wiped out from it? It’s been getting really bad throughou...

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    0 Comments
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    High blood pressure (hypertension)

    Side Effects

    I have chronic pain ever since. I also have/had high blood pressure before and since.

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    0 Comments
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    Surgery

    Procedure or Surgery

    They told me I had a large mass on my adrenal gland. They went to remove it. Found out it was a little bigger than a softball size...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    Misdiagnosed

    Oh No

    mono? NOPE

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    1 Comment
    • webean03
    • Experience with Adrenal Cortical Canc...
    over 7 years ago
    webean03's Avatar

    Fatigue (tiredness)

    Side Effects

    I was misdiagnosed with mono, I was tired, dizzy, blurred vision, just didn’t feel good. I went back saw a different Doctor, and he...

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Breakthrough

    Celebration

    James' blood serum mitotane levels pass the theraputic dose of 14 ug/L and are now at 25 ug/L. This is like a brahms quartet lulling...

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Cancer is shrinking

    Celebration

    Nodules continue to shrink. We forge ahead.

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer spread to lungs with large cancer burden from nodules in lungs.

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    0 Comments
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