• JennyWren
    • Experience with High-Grade Astrocyto...
    over 1 year ago
    JennyWren's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    No nausea or hair loss, minimal fatigue but still a battle to ingest knowing that it can do harm to good cells too

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • JennyWren
    • Experience with High-Grade Astrocyto...
    over 1 year ago
    JennyWren's Avatar

    Surgery

    Procedure or Surgery

    Ten days after my husbands craniotomy he suffered a brain bleed / stroke in which neurosurgeon suggested to just let him go due to t...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Agree
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    • JennyWren
    • Experience with High-Grade Astrocyto...
    over 1 year ago
    JennyWren's Avatar

    Oh No

    My husband is younger than I am, he is active and fit.... how can this have happened and why him and not me. He is so strong emotio...

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    • llsullivan
    • Experience with High-Grade Astrocyt...
    over 1 year ago
    llsullivan's Avatar

    when I got out of hospital... neurosurgeon had told my family everything... i didnt

    Oh No

    understand anything !!! I thought I was done heal and go back to work... easy peasy lemon squeezy.. WRONG

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    • marly
    • Experience with High-Grade Astrocytoma (...
    almost 2 years ago
    marly's Avatar

    Internal radiation

    Radiation

    had only 21 of the prescribed 28 treatments and even those 21 were not consistent because patient sometmes refused the treatments be...

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • marly
    • Experience with High-Grade Astrocytoma (...
    almost 2 years ago
    marly's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    There was no surgery except to get a biopsy. No surgery on tumors because they are inoperable, deep in the brain.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. almost 2 years ago
    PattiHawaii's Avatar

    Seizure

    Oh No

    05/08/18

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    0 Comments
  2. almost 2 years ago
    PattiHawaii's Avatar

    Seizure

    Oh No

    04/08/18

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    0 Comments
  3. almost 2 years ago
    PattiHawaii's Avatar

    treatment

    Decision Point

    Avastin or head device maybe both.

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    0 Comments
  4. almost 2 years ago
    PattiHawaii's Avatar

    John Muir

    Celebration

    Approved to treat at John Muir.

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  5. almost 2 years ago
    PattiHawaii's Avatar

    Drs Location

    Oh No

    Neuro was in Redwood City or Sacramento. Explained I don't drive. Checking on approval for another medical facility.

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    0 Comments
  6. almost 2 years ago
    PattiHawaii's Avatar

    Right side not working well.

    Oh No

    Right leg dragging and right arm not working.

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    0 Comments
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