• Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doxo didn't work. Switched to Gemzar and taxotere. Had thinning of hair before but lost so much this time I buzzed my head and wore...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Ibrance did nothing. Tried Doxorubicin with Lartruvo. First dose burned my arm vein. Had port installed before second dose.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Tried Ibrance first

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Cancer has spread/Metastasized

    Oh No

    Just after my one year clear another scan showed not only had it recurred but it also spread to my lungs.

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    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Surgery

    Procedure or Surgery

    Abdominal liposarcoma. Huge mass removed along with my left kidney. They got it all, clean margins. But I was told 50 50 chance of r...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
  1. over 1 year ago
    HelpPeaches' Avatar

    Just Diagnosed

    Oh No

    Hello ... my mom was just diagnosed with high grade pleomorphic undifferentiated dermal sarcoma ... stage 5. wondering if anyone has...

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    0 Comments
    • virginiab
    • Experience with Angiosarcomas, Sarcoma
    over 1 year ago
    virginiab's Avatar

    Surgery

    Procedure or Surgery

    Mastectomy to remove angiosarcoma on skin that was caused by radiation for breast cancer

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • yaba
    • Experience with Liposarcoma
    over 1 year ago
    yaba's Avatar

    Healthjourneys

    Other Care

    This is a series of CD's that have guided imagery and positive affirmations. Reiki. Just keep telling yourself you are going to b...

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    0 Comments
    • yaba
    • Experience with Liposarcoma
    over 1 year ago
    yaba's Avatar

    It was called selinexor.

    Clinical Trial

    After aprox. 10 treatments once a week with a 10 hour RT drive to the clinic I found out I was on the placebo after my scan showed t...

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    0 Comments
    • yaba
    • Experience with Liposarcoma
    over 1 year ago
    yaba's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doxorubicin for 8 treatments. I tolerated it fairly well. Hair loss, fatigue etc.

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • CandGLedo
    • Experience with Epithelioid Sarcoma
    over 1 year ago
    CandGLedo's Avatar

    TRC105 and Votrient

    Clinical Trial

    Husband is currently participating in a clinical trial for Epithelioid Angiosarcoma. He's been on the trial going on 2 years. The fi...

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    1 Comment
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