• chris64
    • Experience with Liposarcoma
    almost 6 years ago
    chris64's Avatar

    Amoxicillan for the surgical infection, Flagyl for the C. diff, Neuroton for the nerve pain and pain medication. I also have to have my wounds cleaned and packed twice a day.

    Drug or Chemo Therapy

    The C. diff caused a lot of intestinal problems and the Amoxicillan made it flare up worse. And since it was so painful at the hosp...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • chris64
    • Experience with Liposarcoma
    almost 6 years ago
    chris64's Avatar

    Surgery

    Procedure or Surgery

    My sister found a Dr. in a top rated hospital that deals strictly with my type of cancer. They asked me to fax over all of my repor...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • chris64
    • Experience with Liposarcoma
    almost 6 years ago
    chris64's Avatar

    I went to the ER for what I thought was the worst case of gas in the world and found out I had retroperitneal lipo sarcoma in my abdonminal cavity.

    Oh No

    The Dr. came in after my Cat Scan and said " You have a mass the size of a football in your abdominal cavity. I had been seeing my ...

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    0 Comments
  1. about 6 years ago
    LvLani75's Avatar

    Problem with doctor

    Oh No

    My orthopedic oncologist who took out the tumor in my knee said I didn't need to go to the Sarcoma center at UCLA. He could just do ...

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    0 Comments
  2. over 6 years ago
    akristine's Avatar

    Remission

    Celebration

    I received this today from the doctor covering for my oncologist. To: Adrienne Kristine From: MICHAEL XIANG LEE MD Received: 1...

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    0 Comments
  3. over 6 years ago
    akristine's Avatar

    Relay for Life

    Milestones

    Will be the survivor speaker and survivor tent hostess for the Relay for Life in San Francisco tomorrow.

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    1 Comment
  4. over 6 years ago
    MissSinLA's Avatar

    Diagnosis - 5/13/13

    Oh No

    Hello community, this is my synopsis of what has happened since my partner and loving boyfriend was diagnosed with Liposarcoma. Afte...

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    1 Comment
  5. over 6 years ago
    Blondiemom's Avatar

    Surgery

    Procedure or Surgery

    I had my second surgery Monday July 8th (2013). The PLAN was to remove the tumor (my oncologists words were if it quacks like a duc...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. over 6 years ago
    MissSinLA's Avatar

    Meditation, reading

    Other Care

    My partner does mediation daily and makes time to read and have quality alone time. This has helped tremendously.

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    0 Comments
  7. over 6 years ago
    MissSinLA's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    My partner and I travelled to Europe where he had the following complementary treatments done: Dentritic Cell Therapy, Newcastle Dis...

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    1 Comment
  8. over 6 years ago
    MissSinLA's Avatar

    Nausea/vomiting/headache/mood changes/fatigue/night sweats, fever/chemo brain/hair loss/low WBC counts/dry mouth/constipation/depression & anxiety/

    Side Effects

    My partner also experienced an allergic reaction in the hospital from the administering of Benadryl to help with nausea. It made him...

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    1 Comment
  9. over 6 years ago
    MissSinLA's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    5 days of inpatient chemo - first 3 days were easy, but the cumulative effects of the high dosage of chemo lead to the last 2 days (...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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