• ikedo
    • Experience with Thymoma
    over 6 years ago
    ikedo's Avatar

    Depression/Anxiety

    Side Effects

    I am having problems with labored breathing esp after little physical exertion

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    0 Comments
    • ikedo
    • Experience with Thymoma
    over 6 years ago
    ikedo's Avatar

    Surgery

    Procedure or Surgery

    My surgeon never explained what the surgery entailed or what not to do after precautions I am so upset with my care from the doctors...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  1. over 6 years ago
    StephanieC's Avatar

    what to do

    Decision Point

    The doctor told me that I need to have a transsternal thymectomy instead of VATS because of how close the growth is to my organs and...

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    0 Comments
    • Ruth1947
    • Experience with Thymic Carcinoma
    almost 7 years ago
    Ruth1947's Avatar

    Money

    Oh No

    Do not have insurance or money

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    0 Comments
  2. about 7 years ago
    davidlaing's Avatar

    Anniversary

    Celebration

    On this second anniversary of my beginning treatments for stage iii-iv thymic cancer, I give thanks for the transformations that mad...

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    0 Comments
    • docdimwit
    • Experience with Non-Hodgkin Lymphoma...
    over 7 years ago
    docdimwit's Avatar

    Radiation

    After two weeks of radiation I could not speak and had a sore throat. My tongue is still sore after monts and it destroyed two teet...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • docdimwit
    • Experience with Non-Hodgkin Lymphoma...
    over 7 years ago
    docdimwit's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemo has left me with a depleted white blood cell platlets and hemoglobin.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • docdimwit
    • Experience with Non-Hodgkin Lymphoma...
    over 7 years ago
    docdimwit's Avatar

    Procedure or Surgery

    Two surgeons who performed byopsy procedurescut a nerve under my collar bone which has left me with great pain on the skin around my...

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • docdimwit
    • Experience with Non-Hodgkin Lymphoma...
    over 7 years ago
    docdimwit's Avatar

    Oh No

    Small B cell indolent lymphoma

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    0 Comments
  3. almost 8 years ago
    charlaynew's Avatar

    Job

    Loss

    I was unable to work during my treatment because of severe pain.

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    0 Comments
  4. almost 8 years ago
    charlaynew's Avatar

    Surgery

    Procedure or Surgery

    I had removal of my thymus on December 12, 2013. What was to be a two day hospital stay turned into two weeks of the worst pain I ev...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. almost 8 years ago
    davidlaing's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Eliminate sugar and refined carbohydrates from your diet and replace them with omega 3 fats and oils. (sugar is cancer's ONLY food; ...

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    2 Comments
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