1. over 4 years ago
    cfields13's Avatar

    Other

    Radiation

    haven't had it yet but is recomended

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. over 4 years ago
    cfields13's Avatar

    Procedure or Surgery

    scared of unknown

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. over 4 years ago
    cfields13's Avatar

    Other

    Decision Point

    whats next

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    0 Comments
    • bgf50
    • Experience with Vulvar Cancer
    about 5 years ago
    bgf50's Avatar

    Surgery

    Procedure or Surgery

    Surgery went well and recovery is less painful than expected. I don't enjoy waiting for pathology.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Gmomcath
    • Experience with Vulvar Cancer
    about 5 years ago
    Gmomcath's Avatar

    Lymphatic drainage massage once a week.

    Other Care

    The massage really helps. Don’t know what I would do without it. My legs hurt all the time but at least I did not have to have che...

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    0 Comments
    • Gmomcath
    • Experience with Vulvar Cancer
    about 5 years ago
    Gmomcath's Avatar

    Lymphodema

    Side Effects

    Must ware compression stockings every day.

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    0 Comments
    • Gmomcath
    • Experience with Vulvar Cancer
    about 5 years ago
    Gmomcath's Avatar

    Surgery

    Procedure or Surgery

    This is a very difficult surgery and I am still recovering 2 years later.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • bgf50
    • Experience with Vulvar Cancer
    over 5 years ago
    bgf50's Avatar

    more advanced than initial diagnosis

    Oh No

    Biopsy showed VIN 3 but surgery pathology showed cancer.

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    0 Comments
    • Optimistic
    • Experience with Basal Cell Carcinom...
    over 5 years ago
    Optimistic's Avatar

    I cannot believe it! The doctor said it could be cancer and I will need to have a biopsy!

    Oh No

    I am a 2 time survivor of cancer already. I was diagnosed with a benign brain tumor that I had removed in 1987 and Medullary Thyroi...

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    1 Comment
  4. over 5 years ago
    Peloquinus1's Avatar

    Other

    Decision Point

    Vulvar tumors have regrown after 6 weeks of radiation.

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    1 Comment
  5. over 5 years ago
    Survivorof2012's Avatar

    I'm a 2 yr Breast Cancer Survivor but just diagnosed with high grade Vulvar Carcinoma

    Decision Point

    My Gyn says he can do wide excision & if it's invaded margin, then see Gyn Oncologist. My Gyn is 70+ yrs old & not clear with answer...

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    1 Comment
  6. almost 6 years ago
    Pamela911's Avatar

    Lymphedema

    Side Effects

    I am now dealing with secondary lymphedema in the lower abdomen and both legs...no cure, but I am learning to manage the symptoms.

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    0 Comments
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