1. over 1 year ago
    WoodsRLovely's Avatar

    Breakthrough

    Celebration

    PET scan found no evidence of current lymphoma!

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    0 Comments
    • Outlier
    • Experience with Classic Hodgkin Disease
    over 1 year ago
    Outlier's Avatar

    Late Effects

    Oh No

    Late effects from radiation include heart valve and lung disease, and hypothyroidism. Comorbidities include congestive heart fai...

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    0 Comments
  2. over 1 year ago
    WoodsRLovely's Avatar

    Cancer is shrinking

    Celebration

    I was put on immunotherapy after the chemo did not work on one of my tumors -- it cured about 70% but this one little tumor was toug...

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Too many to list!

    Side Effects

    Ongoing.

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    External radiation

    Radiation

    21 Gy to neck and chest for 15 days.

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Rash

    Side Effects

    Shingles following final chemotherapy treatment. 5 days spent in isolation at the hospital for treatment.

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Hair loss (alopecia)

    Side Effects

    Complete. Between 1st and 2nd treatments.

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    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Severely ill 3+ days following infusions. Combo: COPP/AOPP 12 rounds.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Surgery

    Procedure or Surgery

    Bone marrow biopsy and aspirations, both pelvis.

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Port "slipped" and needed replaced.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Lolly916
    • Experience with Hodgkin Disease
    over 1 year ago
    Lolly916's Avatar

    Surgery

    Procedure or Surgery

    Lymphectomy biopsy.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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