• Bravmo
    • Experience with Neuroendocrine Carcinom...
    over 4 years ago
    Bravmo's Avatar

    Cancer Buddies

    Loss

    I have many people that I have met over my 5 year cancer journey. I now see more now than I knew. In the past month I have lost 3...

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    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    over 4 years ago
    Bravmo's Avatar

    Cancer is back/Recurred

    Oh No

    Liver, Pancreas, Lung (returned), tumors on my ribs, NET....cancer of the nervous system. With these type of results...I should ...

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    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    over 4 years ago
    Bravmo's Avatar

    CBD/THC

    Decision Point

    I started taking CBD.....they now say it has to be 1 to 1 CBD to THC. There is a company in Colorado....MDHerb. Great CBD.

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    0 Comments
  1. over 4 years ago
    gilligirl67's Avatar

    Tumor Lysis Syndrome

    Side Effects

    resulting in a 10-day hospital stay that included several transfusions and dialysis

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    0 Comments
    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    Dr. appointment

    Celebration

    Informed cancer free..no further treatment or chemo needed..will monitor me through the year via bloodwoork and catscans

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    0 Comments
    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    Surgery

    Procedure or Surgery

    Removed 2ft of lower intestine .also removed 8 tumors and gall bladder

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    get surgery or try natural remedies

    Decision Point

    I chose surgery to try to begin my fight for my life.

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    • dbravmo
    • Experience with Neuroendocrine Carcino...
    about 5 years ago
    dbravmo's Avatar

    Fever

    Side Effects

    Minimal side effects of the Zometa and Samostatin

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    0 Comments
    • Cindy117
    • Experience with Neuroendocrine Carcin...
    about 5 years ago
    Cindy117's Avatar

    Remission

    Celebration

    I have been declared cancer-free based on test results, but the celebration is tempered because risk of recurrence is so high. Posit...

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    • Cindy117
    • Experience with Neuroendocrine Carcin...
    about 5 years ago
    Cindy117's Avatar

    "24 hour urine test" and nuclear body scan

    Procedure or Surgery

    These were tests to determine hormone levels and metastasis to lymph nodes as guides to determine further treatment. Urine test was ...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    about 5 years ago
    Bravmo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am taking a pill form of Chemo.....XELODA. Side effects have been mostly minimal! Thank God.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • susie54
    • Experience with Neuroendocrine Carcino...
    about 5 years ago
    susie54's Avatar

    Procedure or Surgery

    Went to Wren Laboratorities in Branford Connecticut to get the Netest blood test done. Very positive experience. Test results will...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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