• ROMO
    • Experience with Uveal Melanoma
    over 7 years ago
    ROMO's Avatar

    Radio active plaque surgery or enucleation

    Decision Point

    Would make the same decision if today

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    0 Comments
  1. over 7 years ago
    farrahmccraney's Avatar

    Eye removal

    Decision Point

    I have decided to have my left eye removed on February 12th, 2013.

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    0 Comments
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 8 years ago
    marym's Avatar

    coming home

    Celebration

    Staying with parents who are helping take care of three children under the age of 5.

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    0 Comments
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 8 years ago
    marym's Avatar

    Hair loss (alopecia)

    Side Effects

    Chemo brain, hair loss, fatigue, neutropenia, memory changes, mood changes.

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    0 Comments
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 8 years ago
    marym's Avatar

    Internal radiation

    Radiation

    Unpleasant at the least during the experience; radiation was a fearful partner with brain surgery following the anxiety of diagnosis.

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 8 years ago
    marym's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Radiation for brain tumor was followed by chemotherapy that began on the last day of radiation. First chemo was painful; later, a po...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 8 years ago
    marym's Avatar

    Surgery

    Procedure or Surgery

    Surgeon removed part of brain tumor. Required radiation and a second brain surgery which was done by a different surgeon at another ...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. almost 8 years ago
    Effiemae's Avatar

    Body part/function

    Loss

    It is really hard to lose an eye, not to mention vision. I have had several friends tell me they would rather lose a boob than eye....

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    0 Comments
  3. almost 8 years ago
    Effiemae's Avatar

    Misdiagnosed

    Oh No

    I went to the opthamologist last September (2011) to see about have cataracts. When he examined my eyes, he told me that I had cata...

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    0 Comments
  4. almost 8 years ago
    Effiemae's Avatar

    Surgery

    Procedure or Surgery

    On July 27 I had to have my left eye enucleated. The surgery itself was not bad, but the psychological effects have been awful. Ho...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. almost 8 years ago
    Effiemae's Avatar

    None

    Other Care

    During this ordeal, I have had very little emotional or financial support from my family. Their only concern is to find the cheapes...

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    1 Comment
  6. almost 8 years ago
    Effiemae's Avatar

    To have my eye removed.

    Decision Point

    I think I went through the longest period of denial in history and was frantic to save my eye, even though I had no sight in it. I ...

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    0 Comments
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