• JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Misdiagnosed

    Oh No

    Pain in back in 2010 - we asked for xrays. They xrayed him and said there was nothing found. Recent review of same xray and you can ...

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    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Fertility

    Loss

    It is unlikely James will ever have children. I try not to think about it too much because I want to give all my love to him here to...

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Birthday

    Celebration

    James turned 10 in May!!!

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    1 Comment
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Chemo brain

    Side Effects

    Fuuuuuuzzzzzzyyyyy. Hard to do math. Hard to write name. Hard to read.

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    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Cisplatin, Etopicide, Doxyrubicin, 10 rounds - plus daily mitotane

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Misdiagnosed

    Oh No

    At three years old diagnosed with McCune Albright syndrome. Unfortunately the precocious puberty was due to the adrenal tumor instea...

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    • JamesMom
    • Experience with Adrenal Cortical Canc...
    almost 8 years ago
    JamesMom's Avatar

    Surgery

    Procedure or Surgery

    James had a 12 cm tumor removed along with his adrenal glad and kidney.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • cookema
    • Experience with Adrenal Cortical Cance...
    almost 8 years ago
    cookema's Avatar

    Surgery

    Procedure or Surgery

    I had sinus headaches for years and my doctor told me thanks for helping pay for his mersades. He finall sent me to a neurologist wh...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • efizy
    • Experience with Adrenal Cortical Cancer ...
    about 8 years ago
    efizy's Avatar

    Oh No

    it was a miracle,al il say is hope on God 4 ur miracle n ul surely get urs.

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    0 Comments
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    about 8 years ago
    holmstr5's Avatar

    University of Michigan

    Other Care

    We are receiving great care at the University of Michigan. They have a whole program dedicated to treatment and research of adrenal...

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    • holmstr5
    • Experience with Adrenal Cortical Canc...
    about 8 years ago
    holmstr5's Avatar

    Surgery

    Procedure or Surgery

    Surgery went ok. We were suprised when the pathology came back adrenal cancer.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    about 8 years ago
    holmstr5's Avatar

    External radiation

    Radiation

    Just started radiation treatments.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    3 Comments
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