1. about 1 year ago
    Saturnhartwig's Avatar

    External radiation

    Radiation

    Nothing to it. It relieved pain in my femur by reducing pressure. The bone would not heal without this easy 10 minute procedure.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. about 1 year ago
    Saturnhartwig's Avatar

    Surgery

    Procedure or Surgery

    Femur fracture due to chemical exposure and tumor hollowed out bone. I have a stainless steel rod from my knee to my hip. Plate scr...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. over 1 year ago
    MiriamMarino's Avatar

    What will I do next?

    Decision Point

    When I began treatment for relapse Myeloma in January 2018, I was told it would run through June 2019, a total of 18 months. Now, ...

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    3 Comments
  4. over 1 year ago
    Joycebippus' Avatar

    Other

    Other Care

    Self care

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    0 Comments
  5. over 1 year ago
    Allisonsue2's Avatar

    Whether to have one or two stem cell transplants back to back or whether to have stem cell transplant at all

    Decision Point

    Decided on oncologist recommendation to do tandem stem cell transplants. Completed first one 01-05-2018 and second one 03-16-2018.

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    1 Comment
  6. over 1 year ago
    Allisonsue2's Avatar

    Fatigue (tiredness)

    Side Effects

    Many side effects listed not just one but fatigue was the worst along with nausea and loss of appetite. Nothing tastes good either...

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    0 Comments
  7. over 1 year ago
    Allisonsue2's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Many side effects and interactions. Had to take other medications to counteract. Unsure what drugs were cauiwhat reactions.

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Rhody
    • Experience with Multiple Myeloma
    over 1 year ago
    Rhody's Avatar

    Remission

    Celebration

    Complete remission or complete response

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    0 Comments
    • Rhody
    • Experience with Multiple Myeloma
    over 1 year ago
    Rhody's Avatar

    Stem cell

    Decision Point

    Very Rough but I’d do again if I had too

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    0 Comments
    • Rhody
    • Experience with Multiple Myeloma
    over 1 year ago
    Rhody's Avatar

    Misdiagnosed

    Oh No

    Diagnosis and treatment hospitalization

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    0 Comments
    • simplykj
    • Experience with Multiple Myeloma
    over 1 year ago
    simplykj's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    After having 2 stem cell transplants in 2017, I had to start up chemo regimen again consisting of taking 10mg Revlimid daily (oral c...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  8. over 1 year ago
    KeeClarke's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Extreme pain in the feet, to the point of immobility.

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    0 Comments
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