• dmr1971
    • Experience with Melanoma, Vaginal Cancer
    over 4 years ago
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    Just Hearing the Words

    Oh No

    My mom was just diagnosed with invasive melanoma on the vaginal wall near the urethra. She has been having an issue for 18 months a...

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    0 Comments
    • pcakes
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    pcakes' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    woke with terrible headache. Don't know if this is a side effect

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • pcakes
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    pcakes' Avatar

    Surgery

    Procedure or Surgery

    took out lymph nodes almost 4 weeks ago. Still very sore and tired of hurtlng all the time.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • pcakes
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    pcakes' Avatar

    Money

    Oh No

    My oncologist is 150 miles away and I have to go 30 miles for treatments. My late husband was retired military so I guess I'm fortu...

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    0 Comments
    • Dee50
    • Experience with Vaginal Cancer
    over 4 years ago
    Dee50's Avatar

    Immunotherapy

    Clinical Trial

    Tough experience; results still TBD

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    0 Comments
    • susanmck
    • Experience with Squamous Cell Carcino...
    over 4 years ago
    susanmck's Avatar

    Home care

    Other Care

    Last internal radiation therapy was not a good experience. Dr. did not explain procedure. Dr. had not read my history of PT ...

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    • susanmck
    • Experience with Squamous Cell Carcino...
    over 4 years ago
    susanmck's Avatar

    External radiation

    Radiation

    Have IBS with projectile diarrhea/ take lomotil and probiotics. My last treatment was internal targeted radiation.

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • bhankenhof
    • Experience with Squamous Cell Carci...
    over 4 years ago
    bhankenhof's Avatar

    Bleeding

    Side Effects

    rectal bleeding started in January, increased in March, dx as rad proctitis, led to APC (burning of irradiated friable bld vessels) ...

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    • bhankenhof
    • Experience with Squamous Cell Carci...
    over 4 years ago
    bhankenhof's Avatar

    Colonoscopy w APC (Argon Plasma Gas Coagulation)

    Procedure or Surgery

    GI dr burnt 80% of rectum. Burnt the XXX out of the already irradiated tissue. This put my body into total inflammatory response. t...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • bhankenhof
    • Experience with Squamous Cell Carci...
    over 4 years ago
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    Radiation Necrosis of vagina

    Side Effects

    developed radiation necrosis of vagina after swelling developed (lymphedema) inthe genital area, and the vagina mucus membrane tore ...

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    0 Comments
    • bhankenhof
    • Experience with Squamous Cell Carci...
    over 4 years ago
    bhankenhof's Avatar

    Urinary changes (frequency, urgency)

    Side Effects

    developed urinary sream weakness which comes from irrradiated bladder scarring. also have urgency, and sometimes urge incontinence d...

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    0 Comments
    • bhankenhof
    • Experience with Squamous Cell Carci...
    over 4 years ago
    bhankenhof's Avatar

    Vaginal stenosis

    Side Effects

    Scarring from the radiation, tx by dilator therapy

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    0 Comments
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