1. about 3 years ago
    Notbackinup's Avatar

    Cancer has spread/Metastasized

    Oh No

    Lump in neck thought it was a cold. Sent to ear,nose throat for a biopsy. It came back squamous cell unknown primary with mets to bo...

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    0 Comments
    • dberth1
    • Experience with Neuroendocrine Carcino...
    over 3 years ago
    dberth1's Avatar

    Surgery

    Procedure or Surgery

    Great DR, great surgeon, great care - I'm blessed to be surrounded by good people

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • dberth1
    • Experience with Neuroendocrine Carcino...
    over 3 years ago
    dberth1's Avatar

    Cancer has spread/Metastasized

    Oh No

    Spread from primary (colon) to liver, lymph and early stages in lungs

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Diet

    Decision Point

    I am eating more veggies, fruits, less red meats. I plan to go to a vegan conference in October to check out what they have to say. ...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    counseling

    Other Care

    I do counseling once a week to help me stay focused on "me". I am learning to be more compassionate with myself and not so negative...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    I tried complementary care and it didn't work for me. I may try again down the road if I am not doing chemo or radiation where I am...

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Palliative care

    Other Care

    I entered into Palliative Care to get some extra guidance other than from my oncologist. So far, it has worked as far as controllin...

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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Nausea/Vomiting

    Side Effects

    Constantly feel nauseous. Sometimes it will creep up on me out of the blue.

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Mood changes

    Side Effects

    This is a roller coaster for me. Every day is different for me. Some days I am good and laughing and others I would prefer that no...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    It can be 80 degrees outside and I am wrapped up in a blanket freezing. I run fevers at night mainly. Not all the time, but at leas...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Fatigue (tiredness)

    Side Effects

    I constantly feel fatigued. I have to push myself in to getting ready and get myself out of the house. Some days it's good, other ...

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    0 Comments
    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Depression/Anxiety

    Side Effects

    I have depression with anxiety since my diagnosis. It isn't unusual for me to wake crying. Some days I just stay in and rest.

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    0 Comments
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