1. almost 8 years ago
    Effiemae's Avatar

    Body part/function

    Loss

    I have been through quite a bit physically during my life, starting with polio at age four. In 1998 I was burned over 30% of my bod...

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    0 Comments
  2. almost 8 years ago
    Effiemae's Avatar

    none

    Drug or Chemo Therapy

    At this point I am receiving no other treatment.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. almost 8 years ago
    Effiemae's Avatar

    Surgery

    Procedure or Surgery

    In July I went to the University of North Carolina for treatment, and the ocular opthamologist told me my tumor was one of the large...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. almost 8 years ago
    Effiemae's Avatar

    Misdiagnosed

    Oh No

    I have been faithful about eye checkups, and the optometrist I had been seeing for the past seven years told me that I had cataracts...

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    0 Comments
    • sissy
    • Experience with Uveal Melanoma
    almost 8 years ago
    sissy's Avatar

    Body part/function

    Loss

    my right eye was removed.Iam looking for clinical trails in michigan and a oncologist that specialises in melanoma.

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    0 Comments
    • tjw6150
    • Experience with Uveal Melanoma
    about 8 years ago
    tjw6150's Avatar

    External radiation

    Radiation

    In 2005, I had proton beam radiation of the tumor in my right eye. I was fascinated by the technology; the procedure was pretty pai...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    Other

    Drug or Chemo Therapy

    Avast in injections every three months continue.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    Decision Point

    Diagnosis confirmation at Wills eye.

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    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    Surgery

    Procedure or Surgery

    Additional surgery to remove plaque.

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    External radiation

    Radiation

    Did damage as well as good to my eye

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    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    Surgery

    Procedure or Surgery

    Extremely painful after initial surgery of plaque placement.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • ROMO
    • Experience with Uveal Melanoma
    about 8 years ago
    ROMO's Avatar

    Oh No

    During routine eye exam because I was having trouble seeing out of my left eye I was told I had melanoma.

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    0 Comments
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