• DesertFox
    • Experience with Acute Lymphocytic Le...
    almost 2 years ago
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    Oh No

    Shock, surprise, disbelief.

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    • BarbaraV
    • Experience with Chronic Lymphocytic L...
    almost 2 years ago
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    Other

    Decision Point

    I was diagnosed with CLL 8 years ago. My doctor told me it is not curable but can be treated and I have had 3 treatments and 3 remis...

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Home care

    Other Care

    Had a nurse come and change the dressings for my pic line and had to use saline and hyprin everyday for the pic line

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Finished treatment

    Celebration

    Was the best day of my life

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Psychosocial

    Other Care

    Need counseling to cope with the aftermath of treatment

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Hospitalization

    Other Care

    In and out of the hospital for treatment was nerve racking

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Changed treatment center

    Decision Point

    Had to change because of the fact that it wasn’t the right place for me the doctors weren’t good at all and they didn’t communicate ...

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Lost some friends from cancer and some friends from having cancer and a family members

    Loss

    Lost a friend to stomach cancer one to lung cancer and a family member to lung cancer

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    Had to have many blood transfusions

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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    It made me very tired and weak felt nauseous and dizzy weak brain fog stiffness and tingling in legs and feet

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Surgery

    Procedure or Surgery

    I had serious bleeding and was rushed to the hospital and that’s when I was diagnosed with all

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • Nyctimes
    • Experience with Acute Lymphocytic Leu...
    almost 2 years ago
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    Just Diagnosed

    Oh No

    Was shocked beyond belief

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