1. over 2 years ago
    PattiHawaii's Avatar

    Partial removal of cancer/tumor and biopsy

    Procedure or Surgery

    The surgery went very well but only a portion could be removed.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. over 2 years ago
    PattiHawaii's Avatar

    Just Diagnosed

    Oh No

    Shocked to find out my healthy husband had a seizure and it was a malignant glioma.

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    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    They restarted my chemo first time was double original dose. Second month they tripled my original dose .....not a bit of me feels g...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    External radiation

    Radiation

    Radiation was absolutely painless Most difficult part for me was loosing hair

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I took my anti nausea pill then my chemo pills went to bed for night

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    Surgery

    Procedure or Surgery

    I had my biopsy in December and surgery in January. 2 days after surgery I was going home and feeling good

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Deana1
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    Deana1's Avatar

    Just Diagnosed

    Oh No

    I was at work right before holidays had seizure diagnosed with brain cancer

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    0 Comments
    • makers
    • Experience with Astrocytoma
    over 2 years ago
    makers' Avatar

    Fertility

    Loss

    Had one beautiful healthy daughter prior to round 3. Husband and I wanted more children, so we banked 5 embryos to wait and use afte...

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    0 Comments
    • makers
    • Experience with Astrocytoma
    over 2 years ago
    makers' Avatar

    Fatigue (tiredness)

    Side Effects

    Left side weakness including foot drop and loss of dexterity of left hand

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    0 Comments
    • Cadubuc
    • Experience with High-Grade Astrocytoma...
    over 2 years ago
    Cadubuc's Avatar

    Body part/function

    Loss

    Expressive aphasia. Loss of fine motor function of right hand

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    0 Comments
    • Cadubuc
    • Experience with High-Grade Astrocytoma...
    over 2 years ago
    Cadubuc's Avatar

    Body part/function

    Loss

    Expressive aphasia and fine motor of right hand. Loss of job

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    0 Comments
    • Cadubuc
    • Experience with High-Grade Astrocytoma...
    over 2 years ago
    Cadubuc's Avatar

    Other

    Clinical Trial

    Unable to be on trial until fail standard of care

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    0 Comments
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