• honey216
    • Experience with Spindle Cell Tumor
    almost 3 years ago
    honey216's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Pain & numbness in both feet.

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    0 Comments
    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo is a 54 week treatment. I am unable to partake in school at this time

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Surgery

    Procedure or Surgery

    Chest drain, bone marrow extraction, and lymph node extraction.

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Standard portacath

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Cancer has spread/Metastasized

    Oh No

    Diagnosed with stage IV Alveolar Rhabomyosarcoma with an eight inch tumor

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    0 Comments
  1. about 3 years ago
    gr8investor's Avatar

    Cancer is back/Recurred

    Oh No

    I had surgery in August of last year for Soft Tissue Sarcoma. Afterwards, doctors were excited as they said all cancer was dead and ...

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    0 Comments
  2. over 3 years ago
    debshephard's Avatar

    confirmation of diagnosis by Sloan Kettering (tissue anslysis)

    Other Care

    It was hard for the doctors to accurately diagnose jim but in the end both lung masses (right and left side) show Rhabdomyosarcoma.T...

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    0 Comments
    • zaker
    • Experience with Angiosarcomas, Sarcoma
    over 3 years ago
    zaker's Avatar

    Cancer is back/Recurred

    Oh No

    had CT scan two weeks before Christmas and a Colonoscopy 3 days prior, got results and anomaly on my left cheek at lower part of Fla...

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    0 Comments
    • zaker
    • Experience with Angiosarcomas, Sarcoma
    over 3 years ago
    zaker's Avatar

    Allergic reaction

    Side Effects

    during eye brow lift and gold weight, because my mouth on opens approx .86 inches. result of surgery, I was given in my anesthesia a...

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    0 Comments
    • zaker
    • Experience with Angiosarcomas, Sarcoma
    over 3 years ago
    zaker's Avatar

    Surgery

    Procedure or Surgery

    My entire left cheek was taken down to the facial bones in a 14 hour operation, had what is called RADICAL FLAP SURGERY. Avery large...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • zaker
    • Experience with Angiosarcomas, Sarcoma
    over 3 years ago
    zaker's Avatar

    External radiation

    Radiation

    10 rounds over 17 days immediately after chemo and PIC extracted, immediately after PIC was removed had my 1st round, it went rather...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • zaker
    • Experience with Angiosarcomas, Sarcoma
    over 3 years ago
    zaker's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doxorubicin my chemo of choice the first time around, 4 days introduced in arm with a PIC 4 days. pretty nasty stuff!!!!!!!

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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