• PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Internal radiation

    Radiation

    I entered into a treatment to try to shrink four very large tumors and hoping to shrink even the smaller ones that are in my liver. ...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was constantly in the bathroom. Foods didn't taste good. Made me irritable on some days. I took Affinitor by mouth once a day

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • PaigeB
    • Experience with Neuroendocrine Carcinom...
    almost 4 years ago
    PaigeB's Avatar

    Cancer has spread/Metastasized

    Oh No

    My cancer has mets to liver (30) tumors so far. I did Affinitor for 7 months and it quit working. We are looking into other treatm...

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    0 Comments
    • mrsdahrens
    • Experience with Neuroendocrine Carc...
    almost 4 years ago
    mrsdahrens' Avatar

    The love of my life

    Loss

    My husband, David, lost his battle with cancer July 13th, 2015. I'm sorry I haven't been on here much...it is a very difficult thin...

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    • Salical
    • Experience with Neuroendocrine Carcino...
    almost 4 years ago
    Salical's Avatar

    Other

    Other Care

    Following with PET scans every 6 mos

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    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    about 4 years ago
    Bravmo's Avatar

    Cancer Buddies

    Loss

    I have many people that I have met over my 5 year cancer journey. I now see more now than I knew. In the past month I have lost 3...

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    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    about 4 years ago
    Bravmo's Avatar

    Cancer is back/Recurred

    Oh No

    Liver, Pancreas, Lung (returned), tumors on my ribs, NET....cancer of the nervous system. With these type of results...I should ...

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    • Bravmo
    • Experience with Neuroendocrine Carcinom...
    about 4 years ago
    Bravmo's Avatar

    CBD/THC

    Decision Point

    I started taking CBD.....they now say it has to be 1 to 1 CBD to THC. There is a company in Colorado....MDHerb. Great CBD.

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    0 Comments
  1. over 4 years ago
    gilligirl67's Avatar

    Tumor Lysis Syndrome

    Side Effects

    resulting in a 10-day hospital stay that included several transfusions and dialysis

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    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    Dr. appointment

    Celebration

    Informed cancer free..no further treatment or chemo needed..will monitor me through the year via bloodwoork and catscans

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    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    Surgery

    Procedure or Surgery

    Removed 2ft of lower intestine .also removed 8 tumors and gall bladder

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • jonesey
    • Experience with Neuroendocrine Carcino...
    over 4 years ago
    jonesey's Avatar

    get surgery or try natural remedies

    Decision Point

    I chose surgery to try to begin my fight for my life.

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    0 Comments
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