1. about 1 month ago
    ChongsHusband's Avatar

    Shortness of breath

    Side Effects

    Chong had pleural effusions in both lungs, the fluid contained cancer. They put a drain on the right side but none on the left. Pa...

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    0 Comments
  2. about 1 month ago
    ChongsHusband's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    After realizing that Chong's cancer had metastasized, they switched to palliative chemo to help her breathe. It worked perhaps the ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. about 1 month ago
    ChongsHusband's Avatar

    Cancer has spread/Metastasized

    Oh No

    While determining if Chong was ready for surgery to remove the tumor, she developed a pleural effusion first in the right lung and t...

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    0 Comments
  4. about 1 month ago
    ChongsHusband's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chong was diagnosed with stage 2 stomach cancer. The plan was 6 rounds of FolFox, one month to recover, surgery to remove the tumor,...

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 month ago
    GregP_WN's Avatar

    A needle biopsy to see how the initial base is for the tumor after the first injection of the trial drug.

    Procedure or Surgery

    I've had three needle biopsies throughout this 32 years of fighting cancer. The first two were painful but tolerable, this one was b...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 month ago
    GregP_WN's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This was the third port I've had put in throughout the 32 years of dealing with cancer. The first one quit working after about 6 mon...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 month ago
    GregP_WN's Avatar

    I started a clinical trial with Keytruda Combined with ADU-S100 to see how the added drug to Keytruda will help it work.

    Clinical Trial

    This is the trial that I am on: https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/v?id=NCI-2019-04759

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    0 Comments
    • GregP_WN
    • Experience with Squamous Cell Carcino...
    about 1 month ago
    GregP_WN's Avatar

    Immunotherapy - Clinical Trial

    Drug or Chemo Therapy

    I started Keytruda immunotherapy today, and a clinical trial with a drug called ADU-S100 combination. The keytruda went in without a...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • hscancer
    • Experience with Invasive (Infiltratin...
    about 1 month ago
    hscancer's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had my first and second chemotherapy, 5/13 & 5/27, with Taxol. Bone and muscle pain which did not respond to OTC medication. Was pre...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. about 1 month ago
    GBMsurvivordad's Avatar

    lifetime caregiver required

    Other Care

    Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with...

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    0 Comments
  6. about 1 month ago
    GBMsurvivordad's Avatar

    to treat or not to

    Decision Point

    we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long

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    1 Comment
  7. about 1 month ago
    GBMsurvivordad's Avatar

    Return home after 4 months

    Celebration

    quiet at home

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    0 Comments
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