• Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    Worsening of pre-existing conditions: Chronic Fatigue Syndrome / M.E. & Fibromyalgia

    Side Effects

    Both conditions have significantly worsened. The Fibromyalgia became worse during treatment and remains worse almost 3 years on. T...

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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
    Kaylia's Avatar

    Remission

    Celebration

    In August 2016 I was given the news I had wished for - no evidence of disease, I was in remission!!!!

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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    External radiation

    Radiation

    After chemo I had a PET scan which showed a very small area of lymphoma remaining. This meant 15 sessions of radiotherapy. The w...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    Implant chemotherapy port

    Procedure or Surgery

    I had a Hickman Line inserted about a week before my second chemo (the first as an outpatient, and the first of a different type as ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    Pericardical Drain

    Procedure or Surgery

    I was actually considered 'critical' (although was not aware of this until after) due to severe pericardial effusion. I had a very ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    Just Diagnosed

    Oh No

    Didn't make it long enough for tests new GP had arranged and presented as an emergency at A&E. A batch load of scans and tests brou...

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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    4 days ago
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    Problem with doctor

    Oh No

    5 GP appointments spread over 3 months and told I had an allergy, and (most shockingly) NOT to go back to GP for at least a month!!!...

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  1. 4 days ago
    sockmonkette's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had Taxotere, plus two immunotherapies (Herceptin and Perjeta). After 3-4 months, the Taxotere ended and life became much easier o...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 4 days ago
    sockmonkette's Avatar

    Cancer has spread/Metastasized

    Oh No

    I found a hard lymph node above my left clavicle in the fall of 2015. I went to my PCP, who rushed me in for a CT scan, and then ref...

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  3. 4 days ago
    sockmonkette's Avatar

    Finished treatment

    Celebration

    Dana Farber and Middlesex let me to believe my cancer was a finished, washed up, powerless mess and had left my body. Enter 2015.

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  4. 4 days ago
    sockmonkette's Avatar

    Problem with doctor

    Oh No

    Oncologist at Dana Farber said stage 0 "is not even cancer" and I was "cured...nothing you need to worry about anymore"

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  5. 4 days ago
    sockmonkette's Avatar

    Radiation or Tamoxifen or both?

    Decision Point

    I only had one short meeting with the oncologist, who sent me to the radiologist. The radiologist sent me to Dana Farber in Boston f...

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