• Harlee
    • Experience with Chronic Myeloid Leukemi...
    over 1 year ago
    Harlee's Avatar

    Just Diagnosed

    Oh No

    My Mother died of Leukemia. I was afraid.

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    0 Comments
    • Ruthiec
    • Experience with Chronic Myeloid Leukem...
    over 1 year ago
    Ruthiec's Avatar

    Pain

    Side Effects

    We finally figured out time of day to take Sprycel. He started taking it in the mornings so he wouldn't forget. However, he was ex...

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    0 Comments
  1. over 1 year ago
    AshleyTruhan13's Avatar

    Remission

    Celebration

    After my first heavy hit of 2 types of chemotherapy my bone marrow biopsy has come back clear of cancer. I will now undergo 4 rounds...

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    0 Comments
  2. over 1 year ago
    AshleyTruhan13's Avatar

    GnRH agnostic treatment (ovarian suppression)

    Clinical Trial

    I receive a Lupron shot once a month as well as a shot once a day while receiving chemo. This was the only option for me to possibly...

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    0 Comments
  3. over 1 year ago
    AshleyTruhan13's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Fevers with aches and chills. Mouth sores which made it hard to talk, eat or swallow. I experienced pain digesting as well. Laser li...

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    0 Comments
  4. over 1 year ago
    AshleyTruhan13's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy comes with a list of side effects, but medicine and treatments have come a long way to minimize discomfort. My bone mar...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Charlee57
    • Experience with APL (M3), which Usua...
    over 1 year ago
    Charlee57's Avatar

    Other

    Procedure or Surgery

    Failed PICC line. Hickman

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. over 1 year ago
    Steelebones' Avatar

    Finished treatment

    Celebration

    I left the hospital cancer free a month after BMT. Over the last year, I had one hospital stay for about a week due to illness and f...

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  6. over 1 year ago
    Steelebones' Avatar

    Bone Marrow Transplant

    Procedure or Surgery

    Donor was brother. No GVHD. No bad side effects. Did really well.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. over 1 year ago
    Steelebones' Avatar

    External radiation

    Radiation

    Full body radiation. Really painful, sometimes unbearable. Mouth sores, extreme diarrhea, vomiting, muscle pain, bones hurt, burning...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. over 1 year ago
    Steelebones' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This part I was in another hospital for 6 weeks preparing for a BMT. The chemo was much harsher and the side effects much worse.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  9. over 1 year ago
    Steelebones' Avatar

    Diarrhea

    Side Effects

    Had all the typical side effects: pain, diarrhea, etc. Worst part during this part was the fevers. Really high and really horrible.

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    0 Comments
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