• Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
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    Remission

    Celebration

    In August 2016 I was given the news I had wished for - no evidence of disease, I was in remission!!!!

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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
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    External radiation

    Radiation

    After chemo I had a PET scan which showed a very small area of lymphoma remaining. This meant 15 sessions of radiotherapy. The w...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
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    Implant chemotherapy port

    Procedure or Surgery

    I had a Hickman Line inserted about a week before my second chemo (the first as an outpatient, and the first of a different type as ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
    Kaylia's Avatar

    Pericardical Drain

    Procedure or Surgery

    I was actually considered 'critical' (although was not aware of this until after) due to severe pericardial effusion. I had a very ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
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    Just Diagnosed

    Oh No

    Didn't make it long enough for tests new GP had arranged and presented as an emergency at A&E. A batch load of scans and tests brou...

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    • Kaylia
    • Experience with Primary Mediastinal B-C...
    over 1 year ago
    Kaylia's Avatar

    Problem with doctor

    Oh No

    5 GP appointments spread over 3 months and told I had an allergy, and (most shockingly) NOT to go back to GP for at least a month!!!...

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    • Wrenae
    • Experience with B-Cell Lymphoma
    over 1 year ago
    Wrenae's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was diagnosed Nov 2011, Stage 3, Incurable Non-Hodgkin's Follicular Lymphoma (NHFL). I did 2.5 years chemo Bendamustin & Rituxan ...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • waltneely
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    waltneely's Avatar

    Other

    Decision Point

    I must now deside the next line of treatment.the cancer has become more aggressive.

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    0 Comments
    • PLC
    • Experience with B-Cell Lymphoma
    over 1 year ago
    PLC's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Scared 8.5 hour infusion. Low and slow and grateful. Could not have a BM for 10 days...stool softener Enema bought used 4 ..milk of ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • PLC
    • Experience with B-Cell Lymphoma
    over 1 year ago
    PLC's Avatar

    Just Diagnosed

    Oh No

    16 Day wait after biopsy in the pleura of my lung. Called two times. Pathologist was waiting on another stain for determination.

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    0 Comments
    • kcmcmurray
    • Experience with Non-Hodgkin Lymphom...
    over 1 year ago
    kcmcmurray's Avatar

    Problem with doctor

    Oh No

    Primary Treatment and care has been with The Cancer Treatment Centers of America in Zion. They were my second opinion and I highly ...

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  1. over 1 year ago
    Buddyritz's Avatar

    Finished treatment

    Celebration

    I wish to thank God and His mother for looking after us. I wish to thank the doctor who guided us and recommended the chemo treatme...

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    0 Comments
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