• chloeblake
    • Experience with Peripheral T-Cell L...
    about 8 years ago
    chloeblake's Avatar

    Question re. diagnosis

    Oh No

    Although the doctor at U. Penn originally diagnosed my dad with Enteropathy-Associated T-Cell Lymphoma in April 2013, the doctors at...

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    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Cancer is back/Recurred

    Oh No

    My dad has relapsed. There is cancer in his blood, as demonstrated by the presence of CD30 (a tumor marker). Waiting on test resul...

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    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Health Deterioration

    Oh No

    My dad was admitted to Urgent Care at MSKCC after midnight yesterday due to noticeable deterioration of health. Loss of appetite, b...

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    • mitch
    • Experience with Precursor T-Lymphoblasti...
    about 8 years ago
    mitch's Avatar

    Remission

    Celebration

    Remission again! Praise the Lord!! Bone marrow transplant so far has been a SUCCESS! The whole process to get where he is today....R...

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    1 Comment
    • mitch
    • Experience with Precursor T-Lymphoblasti...
    about 8 years ago
    mitch's Avatar

    Bone marrow transplant

    Other Care

    Still recovering from Dec. 19th, 2013 bone marrow transplant

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    0 Comments
    • mitch
    • Experience with Precursor T-Lymphoblasti...
    about 8 years ago
    mitch's Avatar

    Bone marrow transplant

    Decision Point

    Finished Bone Marrow Transplant Procedure

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    • mitch
    • Experience with Precursor T-Lymphoblasti...
    about 8 years ago
    mitch's Avatar

    External radiation

    Radiation

    Total Body Radiation prior to Bone Marrow Transplant. YUCK!

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Anniversary

    Celebration

    Exactly one year ago on April 19th, 2013, my father had emergency surgery for a perforated small intestine, and the doctor discovere...

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    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Rigors

    Side Effects

    Woke in the middle of the night with violent shaking all over. Felt cold with an escalating fever. Went to the ER. Currently gett...

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    • Laurasalzy
    • Experience with Peripheral T-Cell L...
    about 8 years ago
    Laurasalzy's Avatar

    Hoping to pay it forward

    Milestones

    I was recently asked by Greg to participate in a research study being done on Lymphoma by a partner. I was told it would involve a ...

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    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Blood Clot is Gone (No More Lovenox)

    Celebration

    The blood clot originally developed as a consequence of the port that had been installed at U. Penn and unfortunately was placed too...

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    0 Comments
    • chloeblake
    • Experience with Enteropathy Type T-...
    about 8 years ago
    chloeblake's Avatar

    Romidepsin after Autologous Stem Cell Transplantation in Patients with T-Cell Non-Hodgkin Lymphoma

    Clinical Trial

    Began receiving Romidepsin for post-transplant maintenance therapy at MSKCC earlier in the week as part of a clinical trial. So far...

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    0 Comments
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