• mom2two
    • Experience with Skin Cancer - Melanoma
    about 2 years ago
    mom2two's Avatar

    Breakthrough

    Celebration

    I have been in the clinical trial for 2 years now with no recurrence. At my last doctor appt. I found out that due to this, my chanc...

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    2 Comments
  1. over 2 years ago
    Valerie1221's Avatar

    1st Oncology Appointment today...

    Other Care

    Feeling nervous! about to go to my first oncology appointment...wonder what this will all entail...and what tests and procedures and...

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    4 Comments
  2. over 2 years ago
    Valerie1221's Avatar

    Trying to figure out if I want to stay with Kaiser Permanente or City of Hope??

    Decision Point

    Weighing the pros and cons of staying with Kaiser Permanente or switching to City of Hope. I went to City of Hope and took a look ar...

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    3 Comments
  3. over 2 years ago
    Valerie1221's Avatar

    Did some xrays that my PCP Ordered

    Procedure or Surgery

    Did some xrays for my spine and back to see if there are any more masses in or near my back/spine area.

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    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 2 years ago
    Valerie1221's Avatar

    Cancer is back/Recurred

    Oh No

    Found out the results of the biopsy. It's Melanoma. Again.. Except this time instead of it being on my skin it's in my middle medias...

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    5 Comments
  5. over 2 years ago
    Valerie1221's Avatar

    Endoscopic Biopsy through my esophagus

    Procedure or Surgery

    They did a biopsy on the mass itself. They did a biopsy on the Subcarinal lymph node. They collapsed my vein in my right hand trying...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  6. over 2 years ago
    Valerie1221's Avatar

    Scheduled a surgical endoscopic biopsy

    Oh No

    Turns out that 4 different specialists declined to do my biopsy due to risk that's due to the mass' location. I will be having a bio...

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    0 Comments
  7. over 2 years ago
    Valerie1221's Avatar

    CT Guided Lung Biopsy

    Procedure or Surgery

    Turns out it was way too risky to do the Lung Biopsy. So I'll be receiving a call on what to do next. Found out mass is behind my he...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  8. over 2 years ago
    Valerie1221's Avatar

    I've had tons of CAT Scans and we found a 4cm. mass in my middle Medistinal area of my chest.

    Procedure or Surgery

    We need to schedule a lung biopsy to find out what this mass is and if it's cancer.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  9. over 2 years ago
    Valerie1221's Avatar

    Severe Pain...What is it?

    Oh No

    Trying to figure out what the pain is. I have a history of Melanoma on my face that was in-situ/1A. That took several surgeries to r...

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    0 Comments
    • Fawnn
    • Experience with Skin Cancer - Melanoma
    over 2 years ago
    Fawnn's Avatar

    T VEC

    Clinical Trial

    Symptom free since nodular melanoma was treated in a clinical trial with TVEC

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    0 Comments
  10. over 2 years ago
    caensminger's Avatar

    Home care

    Other Care

    Home nurses come over three times per week for dressing changes, vitals, picc line maintenance, etc.

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    0 Comments
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