1. almost 2 years ago
    Valerie1221's Avatar

    Endoscopic Biopsy through my esophagus

    Procedure or Surgery

    They did a biopsy on the mass itself. They did a biopsy on the Subcarinal lymph node. They collapsed my vein in my right hand trying...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  2. almost 2 years ago
    Valerie1221's Avatar

    Scheduled a surgical endoscopic biopsy

    Oh No

    Turns out that 4 different specialists declined to do my biopsy due to risk that's due to the mass' location. I will be having a bio...

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    0 Comments
  3. almost 2 years ago
    Valerie1221's Avatar

    CT Guided Lung Biopsy

    Procedure or Surgery

    Turns out it was way too risky to do the Lung Biopsy. So I'll be receiving a call on what to do next. Found out mass is behind my he...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  4. almost 2 years ago
    Valerie1221's Avatar

    I've had tons of CAT Scans and we found a 4cm. mass in my middle Medistinal area of my chest.

    Procedure or Surgery

    We need to schedule a lung biopsy to find out what this mass is and if it's cancer.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. almost 2 years ago
    Valerie1221's Avatar

    Severe Pain...What is it?

    Oh No

    Trying to figure out what the pain is. I have a history of Melanoma on my face that was in-situ/1A. That took several surgeries to r...

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    0 Comments
    • Fawnn
    • Experience with Skin Cancer - Melanoma
    almost 2 years ago
    Fawnn's Avatar

    T VEC

    Clinical Trial

    Symptom free since nodular melanoma was treated in a clinical trial with TVEC

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    0 Comments
  6. almost 2 years ago
    caensminger's Avatar

    Home care

    Other Care

    Home nurses come over three times per week for dressing changes, vitals, picc line maintenance, etc.

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    0 Comments
  7. almost 2 years ago
    caensminger's Avatar

    Constipation

    Side Effects

    I expected diarrhea. I ended up with mild constipation that also lead to a "blockage" in my GI tract. This blockage caused regurgi...

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    0 Comments
  8. almost 2 years ago
    caensminger's Avatar

    Rash

    Side Effects

    Horrific rash over entire body. I never want to go through that again. Prednisone and a break from treatment where necessary. Sti...

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    0 Comments
  9. almost 2 years ago
    caensminger's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started 2 mg of Mekinist per day about the same time I also started the pembroluzimab. I experienced a HORRIFIC rash over 100% of m...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  10. almost 2 years ago
    caensminger's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Started Pembroluzimab/Keytruda along with Mekinist chemo at the same time. It's hard to determine which caused what side effect. M...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  11. almost 2 years ago
    caensminger's Avatar

    Out of approved treatments. Couldn't get into a trial. My oncologist didn't have any options and was befuddled. Went back to UCLA to exhaust all options.

    Decision Point

    UCLA oncologist was able to clear a path towards two treatments, neither of which has much chance of helping at all. But we are try...

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    0 Comments
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