• suzqz
    • Experience with Clear Cell, Ovarian or F...
    over 2 years ago
    suzqz's Avatar

    Lost loved one

    Loss

    The day I got my port I had my head shaved. When we got home late that day our 14 year old cat was very ill and had to be put down ...

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    0 Comments
    • suzqz
    • Experience with Clear Cell, Ovarian or F...
    over 2 years ago
    suzqz's Avatar

    Remission

    Celebration

    MRI on 12/5/18, almost a year to the day from diagnosis said NO RESIDUAL SIGN OF DISEASE

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    0 Comments
    • suzqz
    • Experience with Clear Cell, Ovarian or F...
    over 2 years ago
    suzqz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Taxol caused neuropathy in my feet and bevacizumab ate my colon up and I became allergic to Carboplatin

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • suzqz
    • Experience with Clear Cell, Ovarian or F...
    over 2 years ago
    suzqz's Avatar

    Abdominal hysterectomy

    Procedure or Surgery

    I had stage 3 ovarian cancer that had wrapped around my colon and spread all around in the abdominal cavity. I had 3 rounds of chemo...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Change medical care.

    Decision Point

    I decided in June 2019 to move from University of Michigan Medicine to I Stanford University Healthcare in Stanford, California. M...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Anniversary

    Celebration

    Having my deadly cancer controlled for 5 years in March 2019 was a day I thought I'd never see. I was literally planning my funeral...

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    1 Comment
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    Crizontinib no longer worked for me after three years. I started Alectinib May 4, 2017. Although my response to treatment improved...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    External radiation

    Radiation

    From 11/22-12/07/16 a XRT 50 Gy to enlarging right infrahilar lymph node was discovered. It caused mass effect on multiple bronchi.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    AT13387 (HSP90 inhibitor) × 2 cycles with concurrent Crizontinib.

    Clinical Trial

    I simply hated this trial that I participated in from May 15, 2015 to July 10, 2015. My lymphedema became worse, I became dehydrate...

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Fatigue (tiredness)

    Side Effects

    Again, from the beginning of my diagnosis, fatigue is an ongoing problem that I work hard at managing on a regular basis.

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Lymphedema

    Side Effects

    From the beginning lymphedema is a very challenging side effect for me.

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    0 Comments
    • pompeysh1a
    • Experience with Adenocarcinoma, Lun...
    over 2 years ago
    pompeysh1a's Avatar

    Diarrhea

    Side Effects

    When taking the carbo/pem/bev intravenous chemotherapy and later a targeted therapy called Crizontinib, diarrhea was terrible for me.

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    0 Comments
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