• moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    Cancer has spread/Metastasized

    Oh No

    Clinical trial failed. Being told no other options besides palliative care. Not going down without a fight. Will be seeking 2nd opin...

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    1 Comment
  1. over 6 years ago
    graciejinxx's Avatar

    Cancer has spread/Metastasized

    Oh No

    He just had abdominal pain that midnight... then by morning time, he was diagnosed of cancer.

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    0 Comments
    • moxie
    • Experience with Bile Duct (Cholangiocarc...
    over 6 years ago
    moxie's Avatar

    BEGUN 12/3/13 WITH CABOCITABINE, AN FDA APPROVED DRUG FOR USE INTREATMENT OF MEDULLARY THYROID CANCER

    Clinical Trial

    THEY STOPPED THE CHEMO FOR 30 DAYS AND ROSY BEGAN A CLINICAL TRIAL ON 12/3/13 WITH AN FDA APPROVED DRUG CALLED CAPCITABINE USED IN T...

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    0 Comments
    • Diana2
    • Experience with Bile Duct (Cholangiocar...
    over 6 years ago
    Diana2's Avatar

    Surgery

    Procedure or Surgery

    My husband underwent the Whipple procedure, surgery was 11 hrs. long what they found was more than they expected. Date of surgery wa...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Porter
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    Porter's Avatar

    Diagnosed late July 2013 with ICC

    Decision Point

    I made the decision to follow the recommended treatment plan from my oncologist.

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    0 Comments
    • Porter
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    Porter's Avatar

    Misdiagnosed

    Oh No

    Misdiagnosed on 2010 with a liver hemangioma

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    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    Side Effects

    I was advised of side affects from clinical trial in Chicago and side affects of chemo recommended by Henry Ford Hospital. My cance...

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    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    I was accepted into University of Chicago's clinical trial. The doctor said that if I did wish to participate in the clinical trial, he would recommend chemo.

    Clinical Trial

    University of Chicago is located in a very busy area. Parking is expensive, as well as hotels. I did not feel I could maneuver by ...

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    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    Radiation

    Radiation was not recommended, just chemo.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    Drug or Chemo Therapy

    I chose no chemo because of side effects. I am in Stage IV and do not feel chemo is right for me due to prognosis and life expectancy.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    I have had on 3 different occasions, stent placement in the liver.

    Procedure or Surgery

    I went into the Henry Ford Hospital on 5/24/13 to seek treatment for a severe itching problem and jaundice. I was told that evening...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • LadyLinden
    • Experience with Bile Duct (Cholangi...
    almost 7 years ago
    LadyLinden's Avatar

    Cancer has spread/Metastasized

    Oh No

    Wow! Life can change as quick as a wink! The PET scan showed lymph node metastasis. The biggest "Oh No" was being diagnosed with ...

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    0 Comments
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