• Debwoman
    • Experience with Chronic Myeloid Leuke...
    almost 6 years ago
    Debwoman's Avatar

    Milestones

    I have been taking Gleevec since March and a blood test has revealed that I am almost in a molecular remission :)

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    • Debwoman
    • Experience with Chronic Myeloid Leuke...
    almost 6 years ago
    Debwoman's Avatar

    Bone Marrow test

    Procedure or Surgery

    I had a bone marrow test done in March - they were testing for the Philadelphia chromosome which confirmed their initial diagnosis t...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  1. almost 6 years ago
    confusedcml's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    So I went in and got my catheter put in then had my first round of chemo feeling scared and im in pain but having high spitits like...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • siti
    • Experience with Chronic Myeloid Leukemia ...
    about 6 years ago
    siti's Avatar

    Other

    Oh No

    My fiance just had a major surgery where the doctors had to remove the cancer cells from his back. They also had to insert 2 tubes, ...

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    0 Comments
    • siti
    • Experience with Chronic Myeloid Leukemia ...
    about 6 years ago
    • mdny
    • Experience with Chronic Myeloid Leukemia ...
    about 6 years ago
    mdny's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am thankful that it is over and hope it never happens again. It has been 2 years since I finished chemo but I mostly remember feel...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • tk123
    • Experience with Chronic Myeloid Leukemia...
    over 6 years ago
    tk123's Avatar

    Chemo brain

    Side Effects

    Heart problems

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    0 Comments
    • anneliese
    • Experience with Chronic Myeloid Leuk...
    over 6 years ago
    anneliese's Avatar

    Remission

    Celebration

    In hematological remission! And cut the dose of Gleevec to 3/4 of what I'd been taking, and can take it once a day now. :)

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    0 Comments
    • anneliese
    • Experience with Chronic Myeloid Leuk...
    over 6 years ago
    anneliese's Avatar

    Gleevec and Zofran

    Drug or Chemo Therapy

    It was "easy" in that I just took a pill twice a day, but it made me extremely nauseous for up to several hours afterwards (even wit...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • anneliese
    • Experience with Chronic Myeloid Leuk...
    over 6 years ago
    anneliese's Avatar

    "Yup, you probably have CML"

    Oh No

    My first hematologist was pretty blase about it -- and that is a direct quote. No "I'm sorry you have to go through this," no sugges...

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    0 Comments
    • Esudina
    • Experience with Chronic Myeloid Leukem...
    over 6 years ago
    Esudina's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    In the begining with the high dose side effects were uncomfortable because of the anemia @ present it comfortable on account of vita...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Dadzbub
    • Experience with Chronic Myeloid Leukem...
    over 6 years ago
    Dadzbub's Avatar

    Pain

    Side Effects

    Lots of headaches and occasionally fatigued and nauseous

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    0 Comments
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