1. over 2 years ago
    Roadking31063's Avatar

    Other

    Other Care

    Rehabilitation @ Kessler Institute to learn to walk again. There for 9 days. Left walking with a cane.

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  2. over 2 years ago
    Roadking31063's Avatar

    Surgery

    Procedure or Surgery

    Had a resection of the tumor within the spinal cord and the syrinx that ran the length of my spine. 10 hour surgery. Needed emergenc...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. over 2 years ago
    Roadking31063's Avatar

    Spinal cord tumor inside the spinal cord found in thoracic area

    Oh No

    Got MRI and confirmed epedymoma within the spinal cord at T1-T-3 area

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    • melkay
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    melkay's Avatar

    Confusion

    Side Effects

    Despression, anxiety, constipation, erection problems, flu symptoms, extreme pain in legs, low white blood cells, breathing, skin...

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    0 Comments
    • melkay
    • Experience with Brain and Spinal Cord T...
    over 2 years ago
    melkay's Avatar

    Relationship issues

    Oh No

    He is distant and wants to be on his own. Short tempered. Thinks that I deserve better. Thinks everyone is against him

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    0 Comments
    • Rachael58
    • Experience with High-Grade Astrocyto...
    almost 3 years ago
    Rachael58's Avatar

    Milestones

    4 years in remission! My surgery was July 2013. It is now October 2017 and cancer still free.

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    0 Comments
    • Marisol25
    • Experience with High-Grade Astrocyto...
    about 3 years ago
    Marisol25's Avatar

    Surgery

    Procedure or Surgery

    He went into surgery, naturally we were scared of the side effects, but I can happily inform that the surgery went really well. The ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Marisol25
    • Experience with High-Grade Astrocyto...
    about 3 years ago
    Marisol25's Avatar

    My dad was a healthy man and it seems that he changed from one day to another Oh NO!

    Oh No

    Latterly one Thursday he was normal and on Friday we started noticing abnormality walking, weakness of his right side of his body, i...

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  4. about 3 years ago
    KiVier2011's Avatar

    Lost loved one

    Loss

    Sadly, my son David passed away last October. I have found it difficult to even say those words, but I am healing and slowly it is b...

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    0 Comments
    • suzbri
    • Experience with Ganglioglioma
    over 3 years ago
    suzbri's Avatar

    External radiation

    Radiation

    Much greater loss of hair than expected. Fatigue

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • shelntony
    • Experience with Brain and Spinal Cor...
    over 3 years ago
    shelntony's Avatar

    Confusion

    Side Effects

    cant think or remember stuff as quickly ..anxiety stays pretty high pain lever is always above a 10 I take on pain pill every8 hours...

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    0 Comments
    • shelntony
    • Experience with Brain and Spinal Cor...
    over 3 years ago
    shelntony's Avatar

    biopsy on left side of brain

    Procedure or Surgery

    its already been a long road

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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