• Kylerem
    • Experience with Epithelial Ovarian Car...
    10 months ago
    Kylerem's Avatar

    Remission

    Celebration

    I received my CT scan results today and they are clear. CA 125 has settled at 20 as my baseline. I feel like I can breathe a little

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    1 Comment
    • Vanessa359
    • Experience with Ovarian and Fallopi...
    10 months ago
    Vanessa359's Avatar

    Just Diagnosed

    Oh No

    October 2018

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    0 Comments
    • Kylerem
    • Experience with Epithelial Ovarian Car...
    10 months ago
    Kylerem's Avatar

    Procedure or Surgery

    I was diagnosed with stage 4 ovarian cancer in August 2018 while out of state dropping my youngest daughter off at college. I had 3...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • Reina
    • Experience with Ovarian and Fallopian Tu...
    10 months ago
    Reina's Avatar

    Finished treatment

    Celebration

    Ring the bell.

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    0 Comments
    • Reina
    • Experience with Ovarian and Fallopian Tu...
    10 months ago
    Reina's Avatar

    Hair loss (alopecia)

    Side Effects

    Awful experience. Achy bone pain, nausea. Did not feel good.

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    0 Comments
    • Reina
    • Experience with Ovarian and Fallopian Tu...
    10 months ago
    Reina's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    As going thru the side effect of the chemo was bad, I went to the mall with my head gear on. So far at this point I have not broken ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • Reina
    • Experience with Ovarian and Fallopian Tu...
    10 months ago
    Reina's Avatar

    After a total hysterectomy 9 years a go. Removal of tumors formed in top of organs and guts área.

    Procedure or Surgery

    Was a humbling experience, after an 8 hrs. Surgery.

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    Went as Expected: Not Specified
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Reina
    • Experience with Ovarian and Fallopian Tu...
    10 months ago
  1. 10 months ago
    Fran54friend's Avatar

    Other Care

    Doing dialysis when started vaginal bleeding

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    0 Comments
    • Laker
    • Experience with Undifferentiated, Ovaria...
    10 months ago
    Laker's Avatar

    2018 cat scan & PET indicated possible metastasis to bones, spleen, lymph nodes. Had surgical biopsy of suspicion nodes. They were clear, but the removed spleen since it can’t biopsy spleen. So grateful it was not malignant. The diagnosis was sarcoidosis

    Procedure or Surgery

    I have a wonderful oncologist & my surgeon is amazing. He managed to maneuver around all the mesh implanted from wound repair & I re...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Laker
    • Experience with Undifferentiated, Ovaria...
    10 months ago
    Laker's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    I’m still dealing with painful neuropathy in my feet. It leaves me vulnerable to falling.

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    0 Comments
    • Laker
    • Experience with Undifferentiated, Ovaria...
    10 months ago
    Laker's Avatar

    Fluid in the abdomen (ascites)

    Side Effects

    It seemed like the ascites was never ending. Needed paracentesis frequently.

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    0 Comments
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