1. about 3 years ago
    Valerie1221's Avatar

    Severe Pain...What is it?

    Oh No

    Trying to figure out what the pain is. I have a history of Melanoma on my face that was in-situ/1A. That took several surgeries to r...

    Read More

    0 Comments
    • Fawnn
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    Fawnn's Avatar

    T VEC

    Clinical Trial

    Symptom free since nodular melanoma was treated in a clinical trial with TVEC

    Read More

    0 Comments
  2. about 3 years ago
    caensminger's Avatar

    Home care

    Other Care

    Home nurses come over three times per week for dressing changes, vitals, picc line maintenance, etc.

    Read More

    0 Comments
  3. about 3 years ago
    caensminger's Avatar

    Constipation

    Side Effects

    I expected diarrhea. I ended up with mild constipation that also lead to a "blockage" in my GI tract. This blockage caused regurgi...

    Read More

    0 Comments
  4. about 3 years ago
    caensminger's Avatar

    Rash

    Side Effects

    Horrific rash over entire body. I never want to go through that again. Prednisone and a break from treatment where necessary. Sti...

    Read More

    0 Comments
  5. about 3 years ago
    caensminger's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started 2 mg of Mekinist per day about the same time I also started the pembroluzimab. I experienced a HORRIFIC rash over 100% of m...

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. about 3 years ago
    caensminger's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Started Pembroluzimab/Keytruda along with Mekinist chemo at the same time. It's hard to determine which caused what side effect. M...

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. about 3 years ago
    caensminger's Avatar

    Out of approved treatments. Couldn't get into a trial. My oncologist didn't have any options and was befuddled. Went back to UCLA to exhaust all options.

    Decision Point

    UCLA oncologist was able to clear a path towards two treatments, neither of which has much chance of helping at all. But we are try...

    Read More

    0 Comments
  8. about 3 years ago
    caensminger's Avatar

    Laser surgery

    Procedure or Surgery

    Gamma knife again. Rather easy.

    Read More

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  9. about 3 years ago
    caensminger's Avatar

    Cancer is back/Recurred

    Oh No

    Melanoma, two tumors, found in the left side of my brain for the first time. Previous brain tumors had been on the right side only.

    Read More

    0 Comments
  10. about 3 years ago
    caensminger's Avatar

    Laser surgery

    Procedure or Surgery

    Gamma knife surgery. Fairly easy.

    Read More

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  11. about 3 years ago
    caensminger's Avatar

    Cancer is back/Recurred

    Oh No

    Cancer is in the brain again.

    Read More

    1 Comment
  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 7
  7. 9
  8. 10
  9. 11
  10. 12
  11. 83
  12. 84