• matty
    • Experience with Medulloblastoma
    about 9 years ago
    matty's Avatar

    Proton Radiation

    Decision Point

    Finally found a Dr. who is willing to quarterback the radiation treatment with Proton Radio in Jax, FL. He was evaluated and measur...

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  1. about 9 years ago
    jackie_cline's Avatar

    External radiation

    Radiation

    I had proton radiation at ProCure(www.procure.com)

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bbr54
    • Experience with High-Grade Astrocytoma (...
    about 9 years ago
    bbr54's Avatar

    External radiation

    Radiation

    30 treatments over 6 weeks. Just started to feel very tired towards the end. Lost all my hair in the location of the radiation. It i...

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    Painless Experience: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • bbr54
    • Experience with High-Grade Astrocytoma (...
    about 9 years ago
    bbr54's Avatar

    Surgery

    Procedure or Surgery

    My surgery went amazingly well and I am able to live life as before surgery

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    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • bbr54
    • Experience with High-Grade Astrocytoma (...
    about 9 years ago
    bbr54's Avatar

    Relationship issues

    Oh No

    lost my girlfriend once I was diagnosed

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    • Fusionera
    • Experience with Intermediate-Grade A...
    about 9 years ago
    Fusionera's Avatar

    Cancer is back/Recurred

    Oh No

    MRI #66 showed a new spot where there previously was none. I now have appointments set up for March 6th and 7th to meet with the neu...

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  2. about 9 years ago
    hollyhocklady's Avatar

    Surgery

    Procedure or Surgery

    Glioblastoma multiforme, left temporal lobe. Not expected to live.

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • ChristyC
    • Experience with Medulloblastoma
    about 9 years ago
    ChristyC's Avatar

    Side Effects

    Constant ringing in my right ear.

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    • ChristyC
    • Experience with Medulloblastoma
    about 9 years ago
    ChristyC's Avatar

    Surgery

    Procedure or Surgery

    This tumor was on the brain not in it. My neurosurgeon was quite certain that the tumor was a late affect from the radiation treat...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • ChristyC
    • Experience with Medulloblastoma
    about 9 years ago
    ChristyC's Avatar

    Anniversary

    Celebration

    30 year mark in 2013

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    • ChristyC
    • Experience with Medulloblastoma
    about 9 years ago
    ChristyC's Avatar

    Anniversary

    Celebration

    20 year mark in February 2003

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    0 Comments
    • ChristyC
    • Experience with Medulloblastoma
    about 9 years ago
    ChristyC's Avatar

    Anniversary

    Celebration

    10 year mark in 1993

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    0 Comments
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