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- Mmsto70
- Experience with Leiomyosarcoma
Tivozanib
Clinical Trial
The first of two options I received was a clinical trial, the other was stronger chemo. He was very optimistic about the trail worki...
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- Mmsto70
- Experience with Leiomyosarcoma
What options I have since chemo did not work
Decision Point
This was my second scare was when my oncologist stopped chemo and told me she was not sure what to do. So she turned my case over t...
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- Mmsto70
- Experience with Leiomyosarcoma
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- Mmsto70
- Experience with Leiomyosarcoma
Chemotherapy
Drug or Chemo Therapy
The chemo was hard on me, but everyone is different. I seen people during treatment having it easy & others having it much worse the...
Easy to Do: Neutral/NA Minimal Side Effects: Disagree Minimal Impact to Daily Life: Disagree -
- Mmsto70
- Experience with Leiomyosarcoma
External radiation
Radiation
My oncologist choose to do radiation on the largest tumor (approx 5") first. Radiation did not cause any physical pain, but the area...
Painless Experience: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Mmsto70
- Experience with Leiomyosarcoma
Cancer has spread/Metastasized
Oh No
I had a hysterectomy for what was diagnosed as a fibroid tumor. 3 days after surgery I was informed the pathology report came back t...
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- Rubyred214
- Experience with Endometrial (Uterin...
Cancer has spread/Metastasized
Oh No
My mom had blood in her urine, low hemoglobin level. Had a blood transfusion. CT results have shown that the chemo drug is not effec...
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- pagirl
- Experience with Leiomyosarcoma
Chemotherapy
Drug or Chemo Therapy
My mother got cellulitis after first chemo treatment. After antibiotics in the hospital and at home it looks like it is cleared up....
Easy to Do: Neutral/NA Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree -
- pagirl
- Experience with Leiomyosarcoma
Misdiagnosed
Oh No
My mother has been treating a dvt for a year and it was really caused by a tumor that was not read on her MRI.
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- Jalemans
- Experience with Uterine Leiomyosarcoma
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- Jalemans
- Experience with Uterine Leiomyosarcoma
Surgery
Procedure or Surgery
Full hysterectomy + ovaries & fallopian tubes
Went as Expected: Neutral/NA Minimal Recovery: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- MustLoveRedSox
- Experience with Endometrial (Ut...