• Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
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    Tivozanib

    Clinical Trial

    The first of two options I received was a clinical trial, the other was stronger chemo. He was very optimistic about the trail worki...

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    0 Comments
    • Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
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    What options I have since chemo did not work

    Decision Point

    This was my second scare was when my oncologist stopped chemo and told me she was not sure what to do. So she turned my case over t...

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    • Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
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    Pain

    Side Effects

    I had muscle pain and eventually lost strength in my legs, I could walk maybe 5 - 10 feet and have to sit down to rest. The bone pai...

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    1 Comment
    • Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
    Mmsto70's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemo was hard on me, but everyone is different. I seen people during treatment having it easy & others having it much worse the...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
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    External radiation

    Radiation

    My oncologist choose to do radiation on the largest tumor (approx 5") first. Radiation did not cause any physical pain, but the area...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Mmsto70
    • Experience with Leiomyosarcoma
    almost 8 years ago
    Mmsto70's Avatar

    Cancer has spread/Metastasized

    Oh No

    I had a hysterectomy for what was diagnosed as a fibroid tumor. 3 days after surgery I was informed the pathology report came back t...

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    0 Comments
    • Rubyred214
    • Experience with Endometrial (Uterin...
    almost 8 years ago
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    Cancer has spread/Metastasized

    Oh No

    My mom had blood in her urine, low hemoglobin level. Had a blood transfusion. CT results have shown that the chemo drug is not effec...

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    4 Comments
    • pagirl
    • Experience with Leiomyosarcoma
    almost 8 years ago
    pagirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My mother got cellulitis after first chemo treatment. After antibiotics in the hospital and at home it looks like it is cleared up....

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • pagirl
    • Experience with Leiomyosarcoma
    almost 8 years ago
    pagirl's Avatar

    Misdiagnosed

    Oh No

    My mother has been treating a dvt for a year and it was really caused by a tumor that was not read on her MRI.

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    0 Comments
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 8 years ago
    Jalemans' Avatar

    Told I have this awful cancer

    Oh No

    Surgeon wrote "leiomyosarcoma" on my hospital wall

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    0 Comments
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 8 years ago
    Jalemans' Avatar

    Surgery

    Procedure or Surgery

    Full hysterectomy + ovaries & fallopian tubes

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    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. almost 8 years ago
    MustLoveRedSox's Avatar

    Surgery

    Procedure or Surgery

    NO COMMENTS as of yet....still trying to navigate thru this site.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
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