• Tgrosso
    • Experience with Triple-Negative Breast...
    7 months ago
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    Just Diagnosed

    Oh No

    tumor found to be Breast Cancer. But not the same as my BC, which was er/pr positive her2 neg. this one is triple negative in June...

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    • Tgrosso
    • Experience with Triple-Negative Breast...
    7 months ago
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    Just Diagnosed

    Oh No

    While on treatment for Metastatic Mediastinal Melanoma, new tumor on chest wall and many nodes

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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    External radiation

    Radiation

    rads for pain management both on chest wall and under right arms. which helped for pain but caused lymphodema to go crazy

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    June 2018 started oral chemo called zeloda scan in Sept showed growth while on it. So stopped in Oct. 2018

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    to stop immunotheripy opdivo because of spread

    Decision Point

    immunotheripy is paid for by pharm company. since i had more mets again, payment would stop, so i had to stop

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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    Cancer has spread/Metastasized

    Oh No

    chest wall tumor ct-scan showed positive for cancer

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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    Cancer has spread/Metastasized

    Oh No

    daughter amanda has been insisting I have a bump on my chest wall is getting bigger and to tell my doc so i did and a ct-scan was o...

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    • Tgrosso
    • Experience with Skin Cancer - Melanoma
    7 months ago
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    Cancer has spread/Metastasized

    Oh No

    3/2018- 6 month ct-scan shows 2 new tiny nodules in lungs, too small to biopsy. follow up

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    • TeresaL1
    • Experience with Invasive (Infiltratin...
    7 months ago
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    External radiation

    Radiation

    I start my radiation treatments on Tuesday. I’m already exhausted. Won’t the treatments make me tired also?

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    7 Comments
    • Laker
    • Experience with Undifferentiated, Ovaria...
    7 months ago
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    2018 cat scan & PET indicated possible metastasis to bones, spleen, lymph nodes. Had surgical biopsy of suspicion nodes. They were clear, but the removed spleen since it can’t biopsy spleen. So grateful it was not malignant. The diagnosis was sarcoidosis

    Procedure or Surgery

    I have a wonderful oncologist & my surgeon is amazing. He managed to maneuver around all the mesh implanted from wound repair & I re...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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    • Laker
    • Experience with Undifferentiated, Ovaria...
    7 months ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    I’m still dealing with painful neuropathy in my feet. It leaves me vulnerable to falling.

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    • Laker
    • Experience with Undifferentiated, Ovaria...
    7 months ago
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    Fluid in the abdomen (ascites)

    Side Effects

    It seemed like the ascites was never ending. Needed paracentesis frequently.

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