• DJS
    • Experience with Non-Hodgkin Lymphoma (NHL)
    over 7 years ago
    DJS's Avatar

    Both of us are here to celebrate!

    Celebration

    A little over a year ago, when I had to have my first bone marrow test, I went downstairs to the clinic where I'd be getting chemo f...

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    4 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Cancer is shrinking

    Celebration

    By 95%. After completing six cycles of BFM for my Burkitt's lymphoma PET scans in June, July and August confirmed it has shrunk by ...

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    0 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Mouth sores

    Side Effects

    The worst side effect of methotrexate was mouth ulcers. After the first of my six cycles of BFM my mouth and throat was badly affec...

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    0 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Lumbar puncture

    Procedure or Surgery

    I have had 7 lumbar punctures. I was given mydazolam as a premed. I felt no pain and had no side effects.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Allergic reaction

    Side Effects

    During my first BFM cycle using methotrexate I had a reaction to a white cell transfusion. Thereafter I was given premeds and suf...

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    0 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    So far this year I have spent 65 days in hospital and over 80 visits to the cancer clinic involving receiving chemo and other drugs ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was diagnosed with Burkitt's lymphoma. Because of its size and aggressive nature my Oncologist recommended 6 cycles the BFM (Ber...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Roborjdz
    • Experience with Primary Mediastinal B...
    over 7 years ago
    Roborjdz's Avatar

    Cancer has spread/Metastasized

    Oh No

    Back in November 2013 I was burping a lot. During the night I would often sit on the side of the bed holding my tummy. My GP starte...

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    0 Comments
    • rjarias1
    • Experience with Chronic Lymphocytic L...
    over 7 years ago
    rjarias1's Avatar

    denials

    Oh No

    I had felt how could I get this type of Cancer. Stage 0. they told me it could take years to develop. do not smoke or have not been ...

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    0 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    over 7 years ago
    DonnaP's Avatar

    Fever

    Side Effects

    About the time I hit nadir I required a platelet transfusion. Later I had a fever and had to go to the emergency department and be a...

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    0 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    over 7 years ago
    DonnaP's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have had my first round of DexaBEAM high dose chemotherapy. So far I can largely manage side effects with medications. Each round ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    over 7 years ago
    DonnaP's Avatar

    Cancer is back/Recurred

    Oh No

    The brentuximab helped with the pleural effusions but did not reduce the tumor load.

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    0 Comments
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