• Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Surgery

    Procedure or Surgery

    Feeding tubes were implanted to aid against undernourishment. Expected surgical procedure was to remove a portion of the colon and a...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Fertility

    Loss

    Radiation would lead to loss of fertility as well as a numerous hormonal issues.

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Problem with doctor

    Oh No

    Several Months passed and doctors failed to see the issue from my esophagus. Parents listened to doctors and months passed without n...

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
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    Collapsed Esophagus

    Side Effects

    Result of the previous radiation to the spinal cord. Caused inflamed scar tissue to build and grow around esophagus and force it to...

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Finished treatment

    Celebration

    End of ALL treatments over course of almost ten years.

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
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    External radiation

    Radiation

    Heavy radiation for 2 weeks.

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    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Cancer is back/Recurred

    Oh No

    ALL found again, left testicle, after nearly five years.

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Chemotherapy Fails

    Decision Point

    Chemotherapy wasn't working and the family didn't have any matches for a Bone Marrow transplant.

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Finished treatment

    Celebration

    First successful Survivor at Childrens Hospital Los Angeles for Otologist Bone Marrow Transplant.

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    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Bone Marrow Transplant - Without Donor (Self Harvest)

    Clinical Trial

    Was placed in Sterilization room for nearly six months on Chemotherapy, without immune system.

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    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy begins again to treat the cells.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    almost 9 years ago
    Kemo's Avatar

    External radiation

    Radiation

    Age three to six constant radiation to spinal cord.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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