• B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
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    What kind of treatment?

    Decision Point

    Got some oral medication and decided not to use as bad experience from related meds. Decided to try halving the reg chemo dose. Too...

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    • B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
    B4D's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer matastisized to spine (from pelvis). No choice but to do chemo. Chemo again life threatening.

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    • B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
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    Remission

    Celebration

    Went until 2012 with good numbers, no treatment.

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    • B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
    B4D's Avatar

    Can't do chemo

    Oh No

    Tried chemo, was not considered a good candidate. Med speak for life threatening.

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    • B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
    B4D's Avatar

    External radiation

    Radiation

    Excruciating pain in feet, severe pain in hands.considered radiated out.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • B4D
    • Experience with Multiple Myeloma
    almost 8 years ago
    B4D's Avatar

    Diagnosed

    Oh No

    My husbands diagnoses was missed 3 years before the initial diagnoses in 2006.

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  1. almost 8 years ago
    Brenda_Ann's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Was taking Thalidomide, an oral chemo. along with a steriod.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • Gilpzie
    • Experience with Multiple Myeloma
    almost 8 years ago
    Gilpzie's Avatar

    Diagnosed

    Oh No

    After 8 months and 9 hospitalizations, a diagnosis today. They tried to send her home again 1 week ago without diagnosis, after a di...

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    1 Comment
  2. almost 8 years ago
    Lthompson's Avatar

    Revlimid and dexamethizone currently doing trial

    Clinical Trial

    I still have side affects from the velcade ie; neuropathy , also velcade side affects have made it so I couldn't get additional chem...

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  3. almost 8 years ago
    Lthompson's Avatar

    Heart problems/heart damage

    Side Effects

    Velcade caused many many side affects and caused my heart attack

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  4. almost 8 years ago
    Lthompson's Avatar

    Procedure or Surgery

    Bone Marrow Transplant

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. almost 8 years ago
    Grandpa_Ray's Avatar

    Put on Maintenance Mode

    Celebration

    My numbers have been in the "normal" range now for several months, which means my cancer has shrunk. Since I am experiencing some n...

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    1 Comment
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