• drvnash
    • Experience with Multiple Myeloma
    almost 10 years ago
    drvnash's Avatar

    Diagnosed

    Oh No

    Thought my back went out on me...

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    0 Comments
    • Debio
    • Experience with Multiple Myeloma
    almost 10 years ago
    Debio's Avatar

    Diagnosed

    Oh No

    I have always been an active person; teaching high school, working 2 other jobs to pay the bills, single mom. When I started having ...

    Read More

    0 Comments
  3. almost 10 years ago
    markfeller's Avatar

    To take part in clinical trial or not

    Decision Point

    After contacting a friend of a cousin who is a myeloma expert, I learned of several options at different hospitals. The first one I...

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    0 Comments
  4. almost 10 years ago
    markfeller's Avatar

    Diagnosed

    Oh No

    I could not walk and was told by a back doctor I needed to have a disc replaced. Then after a different type of MRI I was told I had...

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    1 Comment
  5. almost 10 years ago
    Rhonda0403's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Revlimid for maintenance.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. almost 10 years ago
    Rhonda0403's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Zolmeda to stop bone deterioration.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • TFL
    • Experience with Multiple Myeloma
    almost 10 years ago
    TFL's Avatar

    External radiation

    Radiation

    I have a lot of pain but it is isolated to my lower back. As a result I have a tough time getting on/off the table for treatments. ...

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    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • TFL
    • Experience with Multiple Myeloma
    almost 10 years ago
    TFL's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Incredibly painful experience I hope to not repeat too many times going forward.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. almost 10 years ago
    Rhonda0403's Avatar

    To have a stem cell transplant, auto. or not.

    Decision Point

    At the Sarah Cannon Institute in Nashville, TN. And TN Oncology.

    Read More

    1 Comment
  10. almost 10 years ago
    Rhonda0403's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Bard Port. Also had a tri port temporarily during the stem cell transplant.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  11. almost 10 years ago
    Rhonda0403's Avatar

    velcade, thalidomide and dexemethosone

    Drug or Chemo Therapy

    Twice a week visits to the doctor for infusion.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  12. almost 10 years ago
    Rhonda0403's Avatar

    Surgery

    Procedure or Surgery

    I had a tumor on my spine and had part of my vertebrae removed. Daily pain 2 years later. Then, My arm was sore for a while and I...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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