1. almost 8 years ago
    Lthompson's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Revlimid, dexamethizone , and Zometa

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. almost 8 years ago
    Lthompson's Avatar

    Diagnosed

    Oh No

    Originally diagnosed with MGUS that shortly turned into Multiple Myeloma

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    0 Comments
  3. almost 8 years ago
    MyelomaTeacher's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    I was diagnosed with oestiopenia prior to my diagnosis. The bone strengthening drugs have helped this tremendously

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    0 Comments
  4. almost 8 years ago
    MyelomaTeacher's Avatar

    Bone fracture or break

    Side Effects

    I had several compression fractures prior to my diagnosis

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    0 Comments
  5. almost 8 years ago
    MyelomaTeacher's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I used Thalidomide as consolidation therapy until I started to develop PN. So my therapy was switched to Velcade, Revlimid, Dex whi...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. almost 8 years ago
    MyelomaTeacher's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    I used Zometa as a bone strengthening bisphosphonate. I continue to use it but have spread out the treatment cycles.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. almost 8 years ago
    MyelomaTeacher's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My induction therapy included the drugs Revlimid and the steroid dexamethasome.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. almost 8 years ago
    Paul-a-Sir-5-4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Dexemethisone and subcutaneous Velcade got me to complete remission. Steroid side effects make me groggy or wide awake and sleepless.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. almost 8 years ago
    Paul-a-Sir-5-4's Avatar

    Multiple clinical trials

    Clinical Trial

    While they each initially worked (first couple of treatments) I got bumped out of each one when the myeloma came back strong.

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    0 Comments
  10. almost 8 years ago
    Paul-a-Sir-5-4's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a huge reaction during third IV Vekcade cycle

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  11. almost 8 years ago
    Paul-a-Sir-5-4's Avatar

    Diagnosed

    Oh No

    "You have a myeloma" so how do I make lemonade from this?

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    0 Comments
    • geskoi
    • Experience with Multiple Myeloma
    about 8 years ago
    geskoi's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    DVD - doxorubicin, vincristine, dexamethasone M-spike went from 6.1 to low enough for an autologous stem cell transplant.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
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