• TFL
    • Experience with Multiple Myeloma
    over 8 years ago
    TFL's Avatar

    External radiation

    Radiation

    I have a lot of pain but it is isolated to my lower back. As a result I have a tough time getting on/off the table for treatments. ...

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    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • TFL
    • Experience with Multiple Myeloma
    over 8 years ago
    TFL's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Incredibly painful experience I hope to not repeat too many times going forward.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. over 8 years ago
    Rhonda0403's Avatar

    To have a stem cell transplant, auto. or not.

    Decision Point

    At the Sarah Cannon Institute in Nashville, TN. And TN Oncology.

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    1 Comment
  2. over 8 years ago
    Rhonda0403's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Bard Port. Also had a tri port temporarily during the stem cell transplant.

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. over 8 years ago
    Rhonda0403's Avatar

    velcade, thalidomide and dexemethosone

    Drug or Chemo Therapy

    Twice a week visits to the doctor for infusion.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 8 years ago
    Rhonda0403's Avatar

    Surgery

    Procedure or Surgery

    I had a tumor on my spine and had part of my vertebrae removed. Daily pain 2 years later. Then, My arm was sore for a while and I...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    What kind of treatment?

    Decision Point

    Got some oral medication and decided not to use as bad experience from related meds. Decided to try halving the reg chemo dose. Too...

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    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer matastisized to spine (from pelvis). No choice but to do chemo. Chemo again life threatening.

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    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    Remission

    Celebration

    Went until 2012 with good numbers, no treatment.

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    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    Can't do chemo

    Oh No

    Tried chemo, was not considered a good candidate. Med speak for life threatening.

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    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    External radiation

    Radiation

    Excruciating pain in feet, severe pain in hands.considered radiated out.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • B4D
    • Experience with Multiple Myeloma
    over 8 years ago
    B4D's Avatar

    Diagnosed

    Oh No

    My husbands diagnoses was missed 3 years before the initial diagnoses in 2006.

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    0 Comments
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