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- drvnash
- Experience with Multiple Myeloma
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- Debio
- Experience with Multiple Myeloma
Diagnosed
Oh No
I have always been an active person; teaching high school, working 2 other jobs to pay the bills, single mom. When I started having ...
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- markfeller
- Experience with Multiple Myeloma
To take part in clinical trial or not
Decision Point
After contacting a friend of a cousin who is a myeloma expert, I learned of several options at different hospitals. The first one I...
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- markfeller
- Experience with Multiple Myeloma
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- Rhonda0403
- Experience with Multiple Myeloma
Chemotherapy
Drug or Chemo Therapy
Revlimid for maintenance.
Easy to Do: Not Specified Minimal Side Effects: Not Specified Minimal Impact to Daily Life: Not Specified -
- Rhonda0403
- Experience with Multiple Myeloma
Bone strengthening drugs
Drug or Chemo Therapy
Zolmeda to stop bone deterioration.
Easy to Do: Strongly Agree Minimal Side Effects: Strongly Agree Minimal Impact to Daily Life: Strongly Agree -
- TFL
- Experience with Multiple Myeloma
External radiation
Radiation
I have a lot of pain but it is isolated to my lower back. As a result I have a tough time getting on/off the table for treatments. ...
Painless Experience: Disagree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- TFL
- Experience with Multiple Myeloma
bone marrow biopsy
Procedure or Surgery
Incredibly painful experience I hope to not repeat too many times going forward.
Went as Expected: Disagree Minimal Recovery: Agree Minimal Side Effects: Agree Minimal Impact to Daily Life: Agree -
- Rhonda0403
- Experience with Multiple Myeloma
To have a stem cell transplant, auto. or not.
Decision Point
At the Sarah Cannon Institute in Nashville, TN. And TN Oncology.
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- Rhonda0403
- Experience with Multiple Myeloma
Implant chemotherapy port
Procedure or Surgery
Bard Port. Also had a tri port temporarily during the stem cell transplant.
Went as Expected: Agree Minimal Recovery: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
- Rhonda0403
- Experience with Multiple Myeloma
velcade, thalidomide and dexemethosone
Drug or Chemo Therapy
Twice a week visits to the doctor for infusion.
Easy to Do: Neutral/NA Minimal Side Effects: Agree Minimal Impact to Daily Life: Neutral/NA -
- Rhonda0403
- Experience with Multiple Myeloma
Surgery
Procedure or Surgery
I had a tumor on my spine and had part of my vertebrae removed. Daily pain 2 years later. Then, My arm was sore for a while and I...
Went as Expected: Strongly Disagree Minimal Recovery: Disagree Minimal Side Effects: Strongly Disagree Minimal Impact to Daily Life: Strongly Disagree