1. about 7 years ago
    KiVier2011's Avatar

    Fatigue (tiredness)

    Side Effects

    So tired all the time. Pushed to complete junior year of high school, and continued studying and completed his work. Sometimes too t...

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    0 Comments
  2. about 7 years ago
    KiVier2011's Avatar

    External radiation

    Radiation

    He was very sick, and lost a lot of weight. We had to pick up and move 100 miles away for the treatment, so huge impact on 2 little ...

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. about 7 years ago
    KiVier2011's Avatar

    Surgery

    Procedure or Surgery

    Had to have c-spine removed (c-1-c-5) and replaced with hardware. The surgery went great, but all life-plans have been stopped becau...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. about 7 years ago
    KiVier2011's Avatar

    Diagnosed

    Oh No

    The tumor was discovered when undergoing treatment for a sports injury! Went from healthy athlete to fighting for life in less than ...

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    0 Comments
    • Hippo
    • Experience with Medulloblastoma
    about 7 years ago
    Hippo's Avatar

    Relationship issues

    Oh No

    When I was diagnosed I was heart broken, I still am. I didn't want to tell anyone but my husband because I didn't and don't want to ...

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    0 Comments
    • Hippo
    • Experience with Medulloblastoma
    about 7 years ago
    Hippo's Avatar

    MRI/CAT scans to be done

    Procedure or Surgery

    This week or next I am having testing done to see how I'm progressing. That's good I suppose. Especially since I just want to be fi...

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    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Boombeen
    • Experience with Brain and Spinal Cord...
    about 7 years ago
  5. about 7 years ago
    msfullofhope's Avatar

    Status of MRI and MGMT gene

    Celebration

    I just returned from my doctor and he said that the news is good. He said there is no evidence of the tumor and that the "cavity" wh...

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    0 Comments
  6. about 7 years ago
    msfullofhope's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Over the past three months, I have been on the 5 day (per month) temador regiment. I finish the third round tonight (1/13/13). I hav...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    about 7 years ago
    Willard801's Avatar

    Surgery

    Procedure or Surgery

    Misdiagnosed, diagnosed, Laid off from her job (so no health insurance), and surgery all within 3 weeks.

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Willard801
    • Experience with Low-grade Astrocytoma
    about 7 years ago
    Willard801's Avatar

    Diagnosed

    Oh No

    After a second look the pain clinic found a brain tumor, and before we left the Dr office they had her an appointment with the cance...

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    0 Comments
  7. about 7 years ago
    Rwillard801's Avatar

    Diagnosed

    Oh No

    Well I had 1 and 3 year old. It's was the worse thing I could have been diagnosed with. I had only been married for only 3 years. Wh...

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    0 Comments
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