• Kaylia
    • Experience with Primary Mediastinal B-C...
    3 months ago
    Kaylia's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I had a Hickman Line inserted about a week before my second chemo (the first as an outpatient, and the first of a different type as ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    3 months ago
    Kaylia's Avatar

    Pericardical Drain

    Procedure or Surgery

    I was actually considered 'critical' (although was not aware of this until after) due to severe pericardial effusion. I had a very ...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    3 months ago
    Kaylia's Avatar

    Just Diagnosed

    Oh No

    Didn't make it long enough for tests new GP had arranged and presented as an emergency at A&E. A batch load of scans and tests brou...

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    0 Comments
    • Kaylia
    • Experience with Primary Mediastinal B-C...
    3 months ago
    Kaylia's Avatar

    Problem with doctor

    Oh No

    5 GP appointments spread over 3 months and told I had an allergy, and (most shockingly) NOT to go back to GP for at least a month!!!...

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    0 Comments
  1. 3 months ago
    sockmonkette's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had Taxotere, plus two immunotherapies (Herceptin and Perjeta). After 3-4 months, the Taxotere ended and life became much easier o...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. 3 months ago
    sockmonkette's Avatar

    Cancer has spread/Metastasized

    Oh No

    I found a hard lymph node above my left clavicle in the fall of 2015. I went to my PCP, who rushed me in for a CT scan, and then ref...

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    0 Comments
  3. 3 months ago
    sockmonkette's Avatar

    Finished treatment

    Celebration

    Dana Farber and Middlesex let me to believe my cancer was a finished, washed up, powerless mess and had left my body. Enter 2015.

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    0 Comments
  4. 3 months ago
    sockmonkette's Avatar

    Problem with doctor

    Oh No

    Oncologist at Dana Farber said stage 0 "is not even cancer" and I was "cured...nothing you need to worry about anymore"

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    0 Comments
  5. 3 months ago
    sockmonkette's Avatar

    Radiation or Tamoxifen or both?

    Decision Point

    I only had one short meeting with the oncologist, who sent me to the radiologist. The radiologist sent me to Dana Farber in Boston f...

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    0 Comments
  6. 3 months ago
    sockmonkette's Avatar

    Just Diagnosed

    Oh No

    2012 - diagnosed with stage 0 DCIS. Only saw an oncologist once. Breast surgeon handled my case and met with tumor board. In retrosp...

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    0 Comments
  7. 3 months ago
    schweetieangel's Avatar

    Surgery

    Procedure or Surgery

    Cancer is back... Surgery is set for Feb 27. Odd in a way as my first surgery was on Feb 27 2014. Waiting till after surgery to ...

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 3 months ago
    Georgia31305's Avatar

    Surgery

    Procedure or Surgery

    Anxiety overwhelming. Surgery happened without notice so had no expectations. P E T scan shows no cancer but doctors say no studies ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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